posted on Jul, 17 2010 @ 07:24 PM
July 23 – World Sjogren’s Day
This is more of a public service announcement with a conspiracy twist at the end, then just a conspiracy discussion thread.
July 23 is World Sjogren’s Day. Sjogren’s is an AI disease. Some people call it a syndrome and others call it a disease. In our house, we call
it a disease. 90% of people with Sjogren’s are women. The average age of onset is 48 although children can also have Sjogren’s. It is unclear
what causes Sjogren’s; if it is environmental or inherited. Usually a virus or an infection ‘triggers’ the disease to advance or flair. Most
people go six years with various symptoms, jumping from doctor to doctor, before a proper diagnosis is made. Most people have never heard of
Sjogren’s and the doctors who should be screening for it usually don’t.
Symptoms of Sjogren’s include (but aren’t limited to) –
- Neurological problems such as concentration, memory loss, brain fog.
- Dry Nose, recurrent sinusitis, nose bleeds.
- Dry mouth, mouth sores, dental decay: Difficulty with chewing, speech.
- Dry skin, vasculitis, Raynaud’s phenomenon
- Stomach upset, gastroparesis, autoimmune pancreatitis
- Peripheral neuropathy (numb or burning legs and.or arms)
- Dry eyes, corneal ulcerations, and infections
- Difficulty swallowing, heartburn, reflux, esophagitis
- Recurrent bronchitis, pneumonia, interstitial lung disease
- Arthritis, muscle pain.
- Abnormal liver function, chronic active autoimmune hepatitis, cirrhosis
- Severe fatigue
- Hyper sensitivity to medications
- “asthma’ type wheezing and heart rhythm issues
Some people have just one or two symptoms and lead ‘normal’ lives. Others get nailed with many of the symptoms and have a very hard time
Blood tests, the Schirmer eye test, a lip biopsy of a salivary gland, and salivary scintigraphy are tests that are performed to check for Sjogren’s
There is no cure. There are medications available that can help people with the symptoms. Not everyone can tolerate the medications. 60% of people
with Sjogren’s are hyper drug sensitive and have a higher incidence of getting the ‘side effects’ then the rest of the population.
Sjogren’s is considered ‘not fatal’. However, the complications from Sjogren’s are. Pneumonia, liver failure, kidney failure and other
internal organ involvement are very serious. The incidence of lymphomas are significantly higher in people with Sjogren’s. Also, the majority of
people with one AI disease will eventually be diagnosed with others. Many people with Sjogren’s end up also having Thyroid problems such as Graves
Disease or Lupus.
For the conspiracy angle to make this a ‘legitimate’ thread and not just a public service announcement I present some brief anecdotal evidence.
In the many discussions Liz (FlyersFan) has had with other Sjogren’s patients over the past months she has discovered that many of them are
wondering about a link between AI disease and vaccinations. The Sjogren’s patients who feel there may be a link have no proof, but in their hearts
and souls many feel that there might be a link between vaccinations they received and their AI diseases. In particular, some are looking back at
their 1970s Swine Flu vaccinations and are seeing that they, and others they know who received the shots, have AI diseases, whereas those they know
who didn’t receive the shots now do not have AI diseases. For the record, Liz did NOT receive a Swine Flu shot in the 1970s, or this time around
either. She has had all other vaccinations, including some unusual ones that the military gave her such as the plague.
As I said at the beginning, this is more of a public service announcement about World Sjogren’s Day with a bit of a conspiracy twist rather than a
full blown conspiracy thread. I hope it makes people aware of Sjogren’s and that if they think they have some symptoms then they should get tested.