reply to post by Snozaz
I have the chronic version of GB, CIDP-Chronic Imflammatory Demyelinating Polyraticulatingneurophy. It is classified as a rare and orphan disease
affecting 1 in 100,000. I live in a small mountain village of less than 4,000 people and it has two (2) cases, me and a girl i went to school with.
The disease has made both of us homebound. I too underwent the IVIG treatment. Every other day I was checked into the hospital
and spent the entire day on IV drip until i had an allergic reaction to the medicine, at which time treatment stopped. This
disease is the closest thing to hell on earth, unending pain and torment. Roger Zelazney wrote a sf story decades ago about a man who pissed off a
god, entitiled "I have no mouth and I MUST scream!" The only way to live with this disease is to live outside it.