Asking for Help - Ewing's Sarcoma in my three year old Son

Originally posted by Amniodarone
I am all for natural therapies, as long as they don't interfer with the conventional chemo treatments. The one thing that I can add with respect to the organic fruits and vegetables is this: Make sure that you wash the produce well before serving it to your little guy. You should also exercise caution when the nadir portion of the chemo treatment occurs. His immune system will be weakened at this point. It typically occurs 14-21 days after chemo treatments (but this varies depending on the type of Chemo, the dosage, and the schedule). Your doctor will have more information on it.

Really don't want to turn this thread into some kind of debate, but this is just the opinion of someone who puts a lot of faith in medical treatments.
Others will argue that the chemo is far more dangerous than beneficial, and many better and non-harmful alternatives exist.

Obviously, if you stay away from chemo, radiation and the other immune destroying procedures, you don't have to worry about secondary infections from raw fruit, as the immune system will be strengthened not weakened by almost all natural healing methods.

My wife's cousin has just undergone first course of chemo, and we have suggested raw garlic as a good/safe/powerful alternative to antibiotic drugs which further disrupt the body balance, only to have them tell us he is not allowed anything in its raw state due to the risk of infection! Given that garlic is probably the most powerful anti-infection substance found on the planet, this is pretty dumb, but par for the course when dealing with the med community.

[edit on 29/1/09 by RogerT]

Just came across this site, referring to pediatric case of Ewings sarcoma and a mum's fight to help her daughter via nutrition.

restorationhealth.net...

again, best of luck and U2U me if you like.

[edit on 29/1/09 by RogerT]

Originally posted by RogerT

Originally posted by Amniodarone
I am all for natural therapies, as long as they don't interfer with the conventional chemo treatments.

Really don't want to turn this thread into some kind of debate, but this is just the opinion of someone who puts a lot of faith in medical treatments. ...Obviously, if you stay away from chemo, radiation and the other immune destroying procedures, you don't have to worry about secondary infections from raw fruit, as the immune system will be strengthened not weakened by almost all natural healing methods....Given that garlic is probably the most powerful anti-infection substance found on the planet, this is pretty dumb, but par for the course when dealing with the med community.

I take offence at this kind of posting, because it is all well and good for Roger here to slag the medical establishment because of something he read somewhere. Amniodarone has the sound of a medical professional, and what he is saying is reasonable...go for the alternate therapies as long as they don't mess with the medicine.

He also says that this condition is treatable if caught early. Sure, consult your doctor, do your research, and go for the best available option.

But Roger comes out and puts doubt in the minds of the parent? It's their child whose life you are betting. I keep asking...tell me how alternate therapies cured your cancer. I ask...would you deny your child chemo, and feed him/her garlic instead, against the recommendation of your doctors?

I got cured of cancer by radiation therapy. Punkt. I'm really, really freakin' glad I got radiation therapy, cuz my cancer is gone. Gone!

So, while you can decide to munch on a garlic and habanero snack, and wash it down with a bicarb mixed with Vit.C or whatever, and hope like hell it works, I wouldn't recommend it for a stranger's child unless you are prepared to assume responsibility for the results.

Originally posted by JohnnyCanuck
I ask...would you deny your child chemo, and feed him/her garlic instead, against the recommendation of your doctors?

Yes of course, that's a no brainer. And I'd do it out of MASSIVE amounts of personal research together with personal experimentation on my own body over a couple of decades.

The absolute last thing I would do is inject a deadly toxic substance into the veins of my child.

I don't agree with the 'poison yourself back to health' philosophy. It doesn't work very well, as is proven by the stats and the lousy percentages the docs give you when you are considered 'afflicted' with cancer or even worse 'incurable'.

You have your opinion based on your experience, I have mine. We differ. OK.

Making an informed choice requires both sides wouldn't you agree?

Originally posted by JohnnyCanuck
I wouldn't recommend it for a stranger's child unless you are prepared to assume responsibility for the results.

And if the radiation and chemo don't work are you prepared to assume responsibility for the results? Will the doctors?

"My studies have proved conclusively that untreated cancer victims live up to four times longer than treated individuals. If one has cancer and opts to do nothing at all, he will live longer and feel better than if he undergoes radiation, chemotherapy or surgery, other than when used in immediate life-threatening situations."---Prof Jones. (1956 Transactions of the N.Y. Academy of Medical Sciences, vol 6. There is a fifty page article by Hardin Jones of National Cancer Institute of Bethesda, Maryland. He surveyed global cancer of all types and compared the untreated and the treated, to conclude that the untreated outlives the treated, both in terms of quality and in terms of quantity.

"….chemotherapy’s success record is dismal. It can achieve remissions in about 7% of all human cancers; for an additional 15% of cases, survival can be "prolonged" beyond the point at which death would be expected without treatment. This type of survival is not the same as a cure or even restored quality of life."

"Keep in mind that the 5 year mark is still used as the official guideline for "cure" by mainstream oncologists. Statistically, the 5 year cure makes chemotherapy look good for certain kinds of cancer, but when you follow cancer patients beyond 5 years, the reality often shifts in a dramatic way."—John Diamond, M.D.

[edit on 29/1/09 by RogerT]

Originally posted by RogerT

Originally posted by JohnnyCanuck
I ask...would you deny your child chemo, and feed him/her garlic instead, against the recommendation of your doctors?

Yes of course, that's a no brainer. And I'd do it out of MASSIVE amounts of personal research together with personal experimentation on my own body over a couple of decades.

Well, good luck, and I hope you never have to make that decision.

Meanwhile, I know cancer researchers, and massive amounts of money and energy are going into seeking a cure. Very, very smart people are busy searching for a cure, and while there are tantilizing bits...like zyflamend, and old standards like Essiac...the best bet is still cut, burn or poison.

Like I said...gimme somebody...first person...right here...who is going to tell me they were cured by 'alternative' means. Not just something you read...blah, blah, blah. Show me the paperwork: it's called spontaneous remission.

Then we have something to talk about.

Just a quick edit to comment on your quote:"Prof Jones. (1956 Transactions of the N.Y. Academy of Medical Sciences, vol 6. There is a fifty page article by Hardin Jones of National Cancer Institute of Bethesda, Maryland. "

1956? Nineteen freakin' Fifty-six? We've come along a mite since then...

[edit on 29-1-2009 by JohnnyCanuck]

reply to post by JohnnyCanuck


Sigh, did you not read my post?

Mother, close friend, other friends and aquaintances, my own body!

You claim spontaneous remission, yes, that is always what the docs say when you go back to show them what you did without their treatments. It's the only thing they can say, otherwise, they'd have to question their entire belief structures around medicine that they spent a huge amount of money and time developing

In the healing game, I don't need luck, I have a little knowlege, experience and the most powerful healing mechanism ever created - the body.

I'll leave the luck where it belongs with the russian roulette of 'modern hi tech medicine'.

All the best
x

Originally posted by RogerT

"My studies have proved conclusively … (1956 Transactions of the N.Y. Academy of Medical Sciences, vol 6. (my emphasis)

Maybe now that a half century is passed, it's time to redo that study?

Are you really trying to apply a claim from 1956 to current medical practice? Yes, cancer care has a long way still to go, but it's not the same as it was in 1956 either!

Originally posted by RogerT
Dr. Schulze incurables program. 1-800-herb-docIt worked for my mum's breast cancer recovery, my friends liver cancer and a whole host of other problems in myself and people close to me, aged between 6 months and 70+ years.

I did not see this posting of yours, Now, saying it worked for your mum's recovery is not the same as saying it cured her cancer. Is that, then what you mean to say? That this treatment definately cured these cancers?

If so, I am delighted for you. I'd like to see the paperwork scanned and posted, though.

reply to post by americandingbat


Oh Dear.

No, I'm not trying to claim anything, just banged in a couple of posts contra the chemo mantra.

I'm sure I could dig up some quotes circa 2008 if that would be more acceptable.

My goodness, why do people get so heated when you suggest questioning established medical practice and taking a good look at highly successful, proven, long established, harmless, healthful alternatives?

Billions and billions spent looking for a chemical cure for cancer and not much to show for it. The war on cancer is as much a failure as the war on drugs.

People cure their cancers daily using a variety of methods that work in harmony with the body in a healthful and supportive manner.

I find it so bizarre these facts continue to be ignored and slandered?!

Anyway, last post about this from me.

The OP asked for help, I offered a portion of my personal experience and research. I'll back it up via U2U or private conversation with the OP or any other interested party but have no intention to get into a 'healing story pissing contest'.

Apologies if I overstepped the mark.

Originally posted by RogerT
My goodness, why do people get so heated when you suggest questioning established medical practice and taking a good look at highly successful, proven, long established, harmless, healthful alternatives?
...but I have no intention to get into a 'healing story pissing contest'.

Personally, I get all het up because I would hate to think that someone is basing their life and death decisions based upon heresay. Medical procedure changes daily, and alternative therapies are not to be ignored, but neither is standard medical therapy. And asking for evidence is not indulging in a pissing contest.

Dr. Schulze's Incurables programme has one cancer testimonial...Bill W. I'm pleased for him...but it ain't science, and I wouldn't bet my kid.

Self edit to say that I missed one other testimonial...J.J. in Palm Springs beat their brain cancer using the formula. All I can say is that radiation worked for me, and I would be remiss if I didn't say so. On the other hand, I take alternative...complimentary...protocols to go along with it, to ameliorate the ill effects. But to write off the medical establishment? Not bloody likely.

[edit on 29-1-2009 by JohnnyCanuck]

reply to post by ColoradoJens


There are many things that can be done but first gooogle cancertutor for information on the many treatments that can be tried. This site addresses the information void and takes the fear factor out of anyone with cancer. The site does not sell anything but leaves the reader to make up their own mind as to any treatments they may wish to try. For many years any new treatment has been called Quackery to discredit and suppress the knowledge which makes it possible to self medicate.
The AMA has suppressed cancer cures for the last 70 years. As Ross Perot once said follow the money. The cancer industry in the US has a turnover of 70 bilion, the drug companies are the gate keepers of new knowledge and the AMA its watchdog.
Nutritional advice is paramount which identifies foods with an increased alkaline content. A healthy balanced diet with foods designed to boost the immune system and promote wellbeing is supprisingly easy to arrange.
For too long the American people have been lied to and encouraged by advertising to lead a lifestyle of fast food, with little or no excersise.
The result is an epidemic of nationwide proportions of obesity and ill health, principaly brought about by not teaching children and young adults about the foods that they eat. This is because national illhealth suits the government.
Dr Len Horowitz has made a video, on google , In Lies we Trust, a most thought provoking video.
Good luck to your little boy and to you and I hope that he will recover
Celtic Warriorarea51

I watched a movie where they found the cure for cancer, and cured many people. It is on the internet, and is called "Run From the Cure; The Rick Simpson Story" He is in jail because he was curing people and i don't think the ptb, until we are the ptb, want us to find a cure for cancer.

Good luck with your son, son.

A person found a cure for cancer, but it is marijuana oil ingested. The pharmaceutical industry suppresses this information from you by making it a taboo by law. The oil is a cure for cancer and for every other type of disease, but they won't let you buy or sell, or possess it.

And what do you do when the law stands in the way of doing the right thing? What do you do?

[edit on 29-1-2009 by majicdragon]

reply to post by esecallum


Thanks esecallum; both are things that I am researching and hearing good things about. My sister is taking MMS for a systemic fungal infection and is up to 12 drops twice a day - not far enough to tell a difference but no side effects...I am in contact with the site and they are very helpful. Thanks again.

CJ

Originally posted by Anonymous ATS
Hello my friend!

Cancer is spreading all aorund due to our western lifestyle

Mc Donalds, french fries, hamburgers, Cells phones, canned food,
Coke, chemicals, Genetically modified food etc etc pollution etc.

Then it seems that all cancers are caused by some types of fungus, viruses and worms like the bloody fasciola... argh! all due to our lifestyle
and the food we eat that creates an acid enviroment in our bodies
that is the perfect enviroment for these fellows to dwell...

( note that some parts of the human body must be acid, like the stomach
it´s not that all partts must be alkaline, in fact if everything gets alkaline we die )

First of all there are this links everyone should read about cancer:

www.cancertutor.com...

Lots of information about alternative cures and speccialy how the FDA and BIG Farma don´t want the cure for cancer, although they know
there are various cures for it already. a must read for everyone here.

also I corroborate the MMS for anyone , not just cancer but many diseases

www.miraclemineral.org...

If you want the book I can send you complete in PDF

just email me: [email protected]

So good luck ! and don´t loose your faith.

Thanks for this post annonomous. I can't agree more with your sentiments and alkaline levels are very important. MMS seems to be a saving grace (as I just posted, my sister is taking it). Thank you again for the thoughts and kind words.

ColoradoJens

Originally posted by FredT
Howdy,

Sorry about being late to the thread and all.

First off, let me express how sorry I am for you and your family. Now thats out of the way, lets talk about what you can do about it:

I gather you are in Denver. i would highly reccomend that you see the specialist in Oncology at

www.thechildrenshospital.org...

I know them by reputation only but based on that its a good one. You will want an PEDIATRIC oncologist, not an adult one. As well meaning as they may be you want a specialist. (If they are not an option, Primary Childrens Hospital in Utah is also quite good)

Right now the best survival rates are those treated with surgery, chemo, and radiation. As long as the tumor is not too big these offer an 80% 5 year survival rate. (5 years of cancer free is considered beating it and any other cancer that shows up after is considered a "new" one)

You decide whats best for your little one not anybody else!

There are tons of resoruces avalible for you to look at online.

If you have any specific question you can feel free to u2u me and Ill do my best to translate the medspeak for you.

I read an earlier reply that attitude is everything and I think that that is spot on IMHO. Kids pick up thier parents emotions and feeling even at a young age. You need to keep that positive attitude as much as possible.

[edit on 1/28/09 by FredT]

FredT - thank you so much for the information - we are at a different hospital here in Denver, but it has an excellent rep as the oncologist that heads the department actually started the children's program here in Denver. We consulted several Dr.'s around the country, Childrens in Chicago, Sloan Kettering in NY, Childrens here in Den and the protocol is the same; as you say, attitude is everthing and we love the docs and nurses so far. Thanks again for the post as it means much.

ColoradoJens

My heart really goes out to you and I will send my prayers your way, for your little angel's well being.

The miracle mineral solution and this site:

www.cancerfightingstrategies.com... may be worth checking into in your search for additional treatments.

Light and love.

Originally posted by ColoradoJens
[ My sister's little dude has neoblastoma (what are the chances?)

Higher than the average person thinks. If there is a family history of cancer, then you and your kids are at risk for it.

Don't know if you've looked at the clinical trials page here (www.cancer.gov... ) but you can search for options that they are trying and options that they tried and quit because it wasn't a good method.

If you have questions, U2U me. I am in college and have access to medical databases and can actually read the stuff (as can Fred T)

Originally posted by JohnnyCanuck

Originally posted by RogerT

Originally posted by Amniodarone
I am all for natural therapies, as long as they don't interfer with the conventional chemo treatments.

Really don't want to turn this thread into some kind of debate, but this is just the opinion of someone who puts a lot of faith in medical treatments. ...Obviously, if you stay away from chemo, radiation and the other immune destroying procedures, you don't have to worry about secondary infections from raw fruit, as the immune system will be strengthened not weakened by almost all natural healing methods....Given that garlic is probably the most powerful anti-infection substance found on the planet, this is pretty dumb, but par for the course when dealing with the med community.

I take offence at this kind of posting, because it is all well and good for Roger here to slag the medical establishment because of something he read somewhere. Amniodarone has the sound of a medical professional, and what he is saying is reasonable...go for the alternate therapies as long as they don't mess with the medicine.

He also says that this condition is treatable if caught early. Sure, consult your doctor, do your research, and go for the best available option.

But Roger comes out and puts doubt in the minds of the parent? It's their child whose life you are betting. I keep asking...tell me how alternate therapies cured your cancer. I ask...would you deny your child chemo, and feed him/her garlic instead, against the recommendation of your doctors?

I got cured of cancer by radiation therapy. Punkt. I'm really, really freakin' glad I got radiation therapy, cuz my cancer is gone. Gone!

So, while you can decide to munch on a garlic and habanero snack, and wash it down with a bicarb mixed with Vit.C or whatever, and hope like hell it works, I wouldn't recommend it for a stranger's child unless you are prepared to assume responsibility for the results.

Thanks Johnny. I hesitate to say it (due to the incredible amount of anger at the medical establishment, somewhat justified in my opinion), but I am a physician. I am not a pediatric oncologist...as I have stated earlier. (ER Doc, actually). There are many, many people posting their private remedies to cure cancer, and this is all well and good. However, it appears that almost no one has actually read the OP's posts. She has already stated that her child has started on Chemo. This isn't (or shouldn't be) a debate on chemo versus no chemo. She has begun chemotherapy. She is asking for additional help to keep her son as healthy as possible. This isn't about chemo, the medical establishment, or any possible conspiracy with the drug companies. This is about helping her and her son.... simple as that. I hope that we can continue forward from here on out finding good alternative therapies that are not contraindicated with chemo to suggest to her. I also would like to ask everyone to have a modicum of compassion for what she is going through. Nothing is more difficult than watching your child suffer. Jens, I hope that you can take the goodwill out of this thread; and understand that people here are trying to help... even if they get a bit heated at times.