posted on Feb, 14 2007 @ 06:21 PM
Allow me to apologize beforehand should I format this thread in any way incorrectly; while I have been a fan for some time, this is my first post here
I am requesting any information, advice, help, or personal experiences relevant to my story. Now, let me begin.
I was twelve, and I was spending the day at a friend's a few miles from my house, up in the hills. We were riding bikes most of the day (it was hot
June and I still am to this day an avid bikerider), and the sun was starting to go down. We went indoors to his house and had some pizza. It was some
local pizzaria. Honey mustard barbeque, I remember. The food was delicious, and I had a good few slices. We played some video games in his room,
where I noticed a peculiar sensation in my right fingers. Immediately I associated it to the feeling of a hand 'being asleep', for it felt similar,
only not as akin to pins or needles. More like, numb. I mentioned it a few times, but he laughed at me and told me I must've been sitting on my arm
-he said its happened to him a dozen times. I took his word for it, butI had to get home before it got dark though, so as it was just beginning to
draw near I took my leave. I got on my bike and traversed the endurance-sapping hills towards my house. But my arm...It was starting to grow more and
more 'asleep'. I could feel the sensation spreading! It moved up my right side, from my fingertips to my shoulder. Slowly it reached my neck, my
face, and finally my mouth. By now my thought process was feeling disoriented. Words on signs or in my head didn't make any sense. A random thought
popped into my head: "I hope mom made some macaroni." As I tried to speak I began to panic.
"Ma-narc-a-narc-a-ni." I couldn't say the word! Gobeldeegook, all of it. I frantically tried to speak...my mouth was slanted towards the right, and
I was starting to drool. Riding my bike grew increasingly difficult. I made it home, pulling into my driveway and briskly heading towards the house.
One of my brothers' friends was out front, and I shouted gibberish at him, trying to tell him something was wrong. We tried to work it out inside, to
determine what caused it, but we couldn't. My head started to hurt...Like someone was pressing my eyes out from within. Agonizing...
We went to the ER, where the doctor on hand told me I had hyperventilated. He gave me something to calm down, and I fell asleep for some time. When I
woke up, I was in a hospital room, and had had a few CATScans and MRIs done. The reason for this was due to a sinus infection at the time, which
caused some confusion. I was releaed a week later, undiagnosed. I went to doctors in Syracuse, NY, and had an EEG done. My brain levels were perfectly
normal, nor did my brain have any damage. But I wasn't cured.
They happened between doctor visits, periodically, about every month. I wouldn't expect them when they came; at the local park, school, et cetera. It
would be incredibly panicking and frightening. Worse yet, the after affects; even if I managed to sleep during what became known as an episode, the
morning would entail the most excrutiating pain. I've yet to experience worse. As if my head were ready to implode on the slightest movement. This
headache could last for days.
The symptoms are awfully stroke-like, but the damage is not present. I have been given a diagnosis of Migrane Phenomenon, which is a most vague a word
than any a doctor can give you. They told me I'd grow out of them. Years later, I still have these stroke-like lapses, erratically, unexpectedly. I
have heard of what are known as Cluster Headaches, but my symptoms do not match consitently. Also of note, the side that the 'numbness' tends to
attack, if you will, has changed before. It has moved up my left arm on only one occassion. Oddly, the side that begins to feel swollen and numb in my
mouth is always opposite (left arm, right side of mouth, and vice versa).
Could somebody please lend me some advice?