posted on May, 15 2005 @ 05:03 AM
The other day I posted about little Brooke Greenberg and how she is not aging physically or mentally.
The story went as this;
Brooke Greenberg, 12, weighs 13 pounds and is 27 inches long.
But Brooke is actually 12 years old, reported WBAL-TV in Baltimore.
Brooke doesn't age. Her syndrome remains undiagnosed and unnamed, and as far as doctors can tell, she is the only one in the world who has it.
Dr. Laurence Pakula has been Brooke's pediatrician since she was born.
"In height, weight, she's 6 to 12 months," Pakula said. "If you ask any physician who knows nothing about her, the response is that she is maybe a
Her body may not be aging, but Brooke's health is deteriorating. She is fed through a tube, and she's had strokes, seizures, ulcers, severe
respiratory problems and a tumor the size of a lemon.
The four times Brooke has come dangerously close to death, she bounced back and no one knows why.
Pakula points out that the girl has a strong sense of self and of sibling rivalry. Brooke has no language skills, but she does have enough motor
skills to pull herself up in her crib or scoot across the kitchen floor.
Imagine being frozen in time as a baby forever. It sounds impossible, but it describes Brooke Greenberg.
The Baltimore-area girl may look like a baby, but she's nearly a teenager. In most respects, Brooke looks and acts like your average 6-month-old baby
-- she weighs 13 pounds and she is 27 inches long.
Pakula said Brooke has thrived because of the support of her parents and three sisters.
"When one sees how much she has accomplished, it's a wonderful reminder that even for someone who's limited, it's a wonderful world out there,"
As genetic research expands, scientists might be able to learn the secrets of this little girl. But until then, it is Brooke who is doing the
Tonight while trying to search for further info to see if this was real or a hoax,I came across a site that had cached the video and image of
The video can be seen HERE
as well as the source being
The source also includes a link to a blog called California Medicine Man link here
two entries talking about this.
So far NO link has said this was a hoax and seeing that John S. Ford MD, MPH ( a full-time assistant professor at the UCLA School of Medicine ) has
not stated otherwise.I believe there is some sort of cover up here.Something BAD for this little girl is coming.Many painfull tests are soon to come I
This is really sad that this is being hidden.
I then found an interesting link that someone has shared personal experience with children that have similar issues.
This is typical with kids with developmental disabilties. They are often tiny and do not look their age. They hate it. I work with several kids who
are under 50lbs. but older than 16. One of my favorite "little guys" hates it when I call him that...he is 12 and weighs 40 lbs. Most of these kids
have severe medical needs... not just g tubes, but PIC and Central Lines, IV, vac pumps and hemo pumps...chest drainage systems to keep their lungs
clear; kids with intra-cranial shunts with tubes popping out to keep their skulls from expanding.... I work with the most profoundly disabled
kids...very few of them have active trachs or use vents for breathing (that is usually for the brain injured kids and young adults). But they require
body splints made of hard plastic just to keep them upright...because they have no ribs or only half a spine. It's very sad in some respects-to watch
these kids get by. But they are the happiest beings on planet. They really are.
The medical community is doing away with the catch all term of "Cerebral Palsy" and starting to identify each DX differently. Many kids have dual
and triple DX.
Some of the newer (last 30 years) terms being used to identify and treat these disorders- Lesch-Nyhan Syndrome, Rett's Syndrome, Asperger's
Syndrome, Autism, Childhood Disintegrative Disorder, Smith-Magenis syndrome, Fragile X Syndrome...among hundreds of others-help medical people towards
better treatment options. It helps to know exactly what each child has because there are different (and sometimes critical) care pathways we take for
treatment. The very nature of my facility is to take care of those kids who present the biggest challenges to their families. Some of the children I
work with have been at my work for years...I would say the average is about 13....and they rarely have visits from their families. It's like the
family dumps them on our doorstep and runs off. Never to be heard from again until the kid grows up and ages out at 21. I can't count the times some
of the kids made little gifts for Christmas (with Activity staff help of course)...they mail the packages home only to have it returned to us.
This little girl is fortunate to have an actively involved family. Many are not involved and only wish to be called upon the death of their child.
I do not think,or believe rather,that this story is in any way a hoax.This child is suffering from something that many might think is extraordinary to
say the least.But to others,very sad.
Why all news station sites removed it is unknown at this time.But the fact that the story was up one minute around the world,and gone the next at
almost the same exact time,only makes you wonder if something like a 'Medical Conspiracy
' is going on.
[edit on 15-5-2005 by SMR]