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Molly Williams, a physio at BRI, has always been a super-fit athlete but "being breathless is becoming my norm" she says. On top of that she is experiencing waves of emotion, and having difficulty with her memory.For both of them, it's about three months since they first got sick.
Back in March we knew so little about this virus. We assumed that it was a respiratory illness, only to find out that it affects almost every organ in the body. We assumed that we would rely on invasive ventilation and ICU only to find out that early CPAP (non-invasive ventilation with oxygen) on the medical wards was more effective.
We know from studies of patients who had Sars - one of the family of coronaviruses - back in the 2003 epidemic, that almost half of survivors went on to have chronic fatigue or other long-lasting symptoms. So it should not be a surprise that this cunning descendant, Sars-CoV2, should have a similar inheritance.
"My resting heart rate use to be 50 and now it's about 90," she says. "Even with talking I get breathless. I'm getting overwhelming muscular fatigue in my legs and my heart rate goes up to 133-plus on walking."
Molly says she also becomes uncontrollably tearful and "overwhelmingly upset about things". And she has been having problems with her memory.
"I'm forgetting things, and I'm repeating things a few times, I'm just not retaining information. If I try and remember a word I can't. I'm having to write things down all the time just to remember them," she says.
"I've no past medical history and for it to hit me the way it has is really hard."
"I think there could be a big iceberg out there of people who've had Covid-19 and just haven't got back to normal. Every week I'm getting three or four phone calls from GPs who are saying they've seen a patient who had Covid a couple of months ago, and they're still symptomatic," Paul Whitaker says.
"In the clinic we're running we're going to be having a dietician, a physiotherapist, as well as a lot of psychological input, because patients are developing the cardiorespiratory complications, but they're also developing post-traumatic stress, anxiety, depression, and they've got neurological symptoms and chronic-fatigue-like symptoms.
originally posted by: johnb
a reply to: billxam
Sorry to hear that and maybe with some luck we'll get a better understanding of these after affects and will be able to help those in a similar position.
"being breathless is becoming my norm"
originally posted by: FinallyAwake
a reply to: johnb
I hope this isn't true, and it's just the BBC doing their bit (lies).
Would like to know if there are many corroborating links? (don't have time to look atm)
Thanks for sharing 👍🏼
Of 43 patients, 29 were SARS-CoV-2 PCR positive and definite, eight probable and six possible. Five major categories emerged:
(i) encephalopathies (n = 10) with delirium/psychosis and no distinct MRI or CSF abnormalities, and with 9/10 making a full or partial recovery with supportive care only;
(ii) inflammatory CNS syndromes (n = 12) including encephalitis (n = 2, para- or post-infectious), acute disseminated encephalomyelitis (n = 9), with haemorrhage in five, necrosis in one, and myelitis in two, and isolated myelitis (n = 1). Of these, 10 were treated with corticosteroids, and three of these patients also received intravenous immunoglobulin; one made a full recovery, 10 of 12 made a partial recovery, and one patient died;
(iii) ischaemic strokes (n = 8) associated with a pro-thrombotic state (four with pulmonary thromboembolism), one of whom died;
(iv) peripheral neurological disorders (n = 8), seven with Guillain-Barré syndrome, one with brachial plexopathy, six of eight making a partial and ongoing recovery; and
(v) five patients with miscellaneous central disorders who did not fit these categories. SARS-CoV-2 infection is associated with a wide spectrum of neurological syndromes affecting the whole neuraxis, including the cerebral vasculature and, in some cases, responding to immunotherapies.
The high incidence of acute disseminated encephalomyelitis, particularly with haemorrhagic change, is striking. This complication was not related to the severity of the respiratory COVID-19 disease.
We assumed that we would rely on invasive ventilation and ICU only to find out that early CPAP (non-invasive ventilation with oxygen) on the medical wards was more effective.
originally posted by: jjkenobi
Sure doesn't sound like "the flu".
Lots of thing are not adding up.