posted on Jun, 24 2019 @ 09:32 AM
You are definitely not alone.
I have a genetic chronic disease - Poylcystic Kidney Disease. Because of that, I also have high blood presure that, when not medicated properly, would
make mortals tremble in fear...add in a mix of diabetes type 2, compromised immune system and some bone structure decay and I won't be the grumpy old
man telling kids to get off my lawn.
I'm about 10-11 years on him this disease and one of my older brothers just started in-home dialysis and he is an additional 10 years ahead of me, so
I have a roadmap of what I am facing and it's pretty terrifying. He is on the kidney transplant list.
I get all the same advice you do from people who think that exercise, a good diet, proper medication and the like will make it all better. But they
don't really understand, while those things do help, there is no cure.
and I have good days and bad days. Days where no matter what I do my kidneys ache, headaches, fighting off infections constantly, achy bones, etc.
Sometimes I wonder if I really want to live to get old enough to where a transplant is a requirement for survival.
For now, I take each day as it comes and try to be positive about everything. There's no guarantee's in life and none I'll ever live that long to
begin with...because people drive like maniacs these days lol (and I do a lot of driving). Whatever will be, wil be.
So thank you for sharing your story. Here is mine to add to the list with others who have also shared.
Here's a good link I found explaining what it's like to have a chronic disease:
The Spoon Theory
I've hope you find it helpful.