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Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND), and Lou Gehrig's disease, is a specific disease which causes the death of neurons controlling voluntary muscles. Some also use the term motor neuron disease for a group of conditions of which ALS is the most common.
originally posted by: skywatcher44
Hi guys , I have been here since 2012. Why a re introduction ? Well my life has changed for sure.
I left the Fire service here in the UK aged 50 in 2012 I had enough in my pension pot to get by on and I had a sweating problem, I thought this might be due to job stresses and would clear up when I departed.. It did not but it will..
Fast forward to today and I can just about wobble around and my voice is not working correctly I am mostly stuck indoors but can still Just drive safely..
My father with whom I had a on off relationship as he was sometimes to drunk and sometimes violent. He died at aged 59 after being diagnosed with ALS. two years earlier..
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Amyotrophic lateral sclerosis (ALS), also known as motor neurone disease (MND), and Lou Gehrig's disease, is a specific disease which causes the death of neurons controlling voluntary muscles. Some also use the term motor neuron disease for a group of conditions of which ALS is the most common.
en.wikipedia.org...
I know I have this wretched disease although not as yet diagnosed, my appointment with a Hospital Neurology Dept has been given for September 10th Ho Ho.
I am currently trying to get this appointment earlier although I know there is no cure and I am destined to depart this body within the next few months and so cure my sweating.
I was on such a roll last year Swimming, Walking and Biking 4 times a week super fit in fact until November, I had notice some muscle twitches back in June but thought that was down to my exercise.
I am currently working on my pension arrangements so my wife and 2 older boys are taken care of somewhat.
I plan to arrange myself a quiet non religious cremation ( All above board ) and write my own individual eulogy's for my friends and family to read.
I hope to adventure when gone..
Sorry to report.. TIANDB
PS ( Anyone know how I can stay ? Although I don't want to do a Stephen hawking NOI ) Peace Yall.
originally posted by: auroraaus
a reply to: TheTruthAtLast
I'm sure you're well meaning - but not as sure that having a negative bent there like saying he has 15 weeks to save his life is going to be very helpful to his already despondant/frustrated state.
Diagnostic Delays Diagnosis of ALS is often delayed and is generally reported months after commencement of neuronal destruction (57). By the time patients enter a clinical trial, their disease may be too advanced for the drug to work (57). The potential reasons for delay in diagnosis include; the general perception of people to avoid visiting physicians for vague symptoms and wait until they are questionably ill (87). Moreover, earlier presentation of ALS symptoms can be confused with multiple other neurological processes including spinal cord diseases, mononeuropathies, and several neurological syndromes that further delay the diagnosis (87). Delayed referral to a neurologist is one of the major reasons for delayed diagnosis (87, 88). According to one observational study, after first consultation by a general practitioner, the referral to a neurologist, on average, takes 7 months (87β89). The average duration between presentation of first symptoms to diagnosis of ALS is 9.3 months, according to El Escorial and Airlie House criteria (87β90). Time to diagnosis can be further prolonged in patients with spinal onset of ALS and age between 65 and 75 years (87, 89). Limited trial centers for ALS also significantly hinder the access to quality health care and enrollment in trial studies (87, 88).