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Finding doctor for complicated stomach condition and fighting unnecessary surgery

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posted on Apr, 16 2018 @ 08:09 AM
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a reply to: DigginFoTroof

Quick read your op from inside my ambulance here. Untreated... You can die from this!

Not going into why and how.. Get it done if suggested and don't wait!

I was in your shoes once. Please! And let us know.

EMT




posted on Apr, 16 2018 @ 08:12 AM
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originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe
Pointless giving a suggestion the armchair specialists win again.

Good luck... over and out


No armchair specialists are needed.

There is only one test that is excellent for diagnosing gallbladder functions, a HIDA test.

The results of that test will tell you if you have a gallbladder problem.

Pain and attacks after eating are very common signs of gallbladder issues.


If you say so doctor.


Care to show me where I claimed to be a doctor?


You are responding as if you are...

Be careful how you word is all I can suggest.


okey dokey Nurse.


I lost a member of my family because she took too much advice from online « so called doctors » and know it alls such as yourself...

Give it a break and let those who « know » their patients do their job.

Just learn to shut up for once as you are not always right.

Thank you.

Lags


okey dokey pokey.


Too bad about your family member...she should have seen a doctor.

I would never take advice from an online forum.


But informing people of what tests do what is another matter altogether.
edit on R132018-04-16T08:13:56-05:00k134Vam by RickinVa because: (no reason given)



posted on Apr, 16 2018 @ 08:22 AM
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originally posted by: RickinVa

originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe

originally posted by: RickinVa

originally posted by: Lagomorphe
Pointless giving a suggestion the armchair specialists win again.

Good luck... over and out


No armchair specialists are needed.

There is only one test that is excellent for diagnosing gallbladder functions, a HIDA test.

The results of that test will tell you if you have a gallbladder problem.

Pain and attacks after eating are very common signs of gallbladder issues.


If you say so doctor.


Care to show me where I claimed to be a doctor?


You are responding as if you are...

Be careful how you word is all I can suggest.


okey dokey Nurse.


I lost a member of my family because she took too much advice from online « so called doctors » and know it alls such as yourself...

Give it a break and let those who « know » their patients do their job.

Just learn to shut up for once as you are not always right.

Thank you.

Lags


okey dokey pokey.


Too bad about your family member...she should have seen a doctor.

I would never take advice from an online forum.


But informing people of what tests do what is another matter altogether.


You are right on informing or guiding people towards specialists.

Sadly my sister did not have the capacities to see a doctor at that time and I won’t go into details as to why... out of my respect and love for her.

Warmest respects

Lags
edit on 16-4-2018 by Lagomorphe because: Crap

edit on 16-4-2018 by Lagomorphe because: Derp...



posted on Apr, 16 2018 @ 08:27 AM
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P. S. Again.. If suggested, implied or so recommended... Take the dr.'s advice.. Get 2nd, 3rd opinion if necessary... But don't procrastinate.

Body fluids backing from ruptured or diseased organs are nothing to screw with. Gall bladder, pancreas, pyloric disfunctions....serious repercussions exist if left untreated.

God Bless... MS/EMT



posted on Apr, 16 2018 @ 08:32 AM
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Yes for the last 10 or so years I vomit every morning. They have said the same. Gerd? Heart burn? Reflux? Stones? They even did all sorts of tests, all came back relatively normal. Gall bladder had some stones and sludge but my specialist who ordered that scan said at 27, he figured I was too young for that surgery and that it may not even help my issue. He told me to hold off on that surgery unless I really wanted to pay him to remove parts of my body unnecessarily.

I wish I knew. It's given me anxiety which just makes the whole thing worse. I've lost jobs over it, missed fun events because of it, etc....


Good luck, I hope you find out what's causing yours.

I hope I figure mine out too! Though it might be tough since I've effectively given up on more visits and tests. Well at least until my sons medical needs are less then I can focus on me again. Let us know if you ever figure it out though please.


-Alee
edit on 4/16/2018 by NerdGoddess because: (no reason given)



posted on Apr, 16 2018 @ 09:07 AM
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originally posted by: NerdGoddess
Yes for the last 10 or so years I vomit every morning. They have said the same. Gerd? Heart burn? Reflux? Stones? They even did all sorts of tests, all came back relatively normal. Gall bladder had some stones and sludge but my specialist who ordered that scan said at 27, he figured I was too young for that surgery and that it may not even help my issue. He told me to hold off on that surgery unless I really wanted to pay him to remove parts of my body unnecessarily.

I wish I knew. It's given me anxiety which just makes the whole thing worse. I've lost jobs over it, missed fun events because of it, etc....


Good luck, I hope you find out what's causing yours.

I hope I figure mine out too! Though it might be tough since I've effectively given up on more visits and tests. Well at least until my sons medical needs are less then I can focus on me again. Let us know if you ever figure it out though please.


-Alee


Holy cow. I thought I was reading my post, I didn't think it was you describing yourself. I didn't remember writing some of that in the post, but it is basically identical to mine, but not quite as long (not 10 years). can I ask where your pain is, is it right below the breast bone, the apex of the diaphram? Do you get something like a hard knot in that are when you get the pain? As far as vomiting, when I was in the ER on vacation, it just started out of nowhere and was uncontrollable for a couple minutes along with profuse sweatting. Do you get relief from any body positions? Have you tried raising your arms up and back like a hard stretch and see if that relieves the pain? When the pain stops, does it stop abruptly or taper off over time, if so, how long? Mine can stop in a few seconds to a minute or two, it's like a cramp going away.

I understand the anxiety part. Not knowing when it is going to happen is hell. My anxiety has made the pain worse I think and it seems to make the attacks more frequent. I find it odd that the muscle relaxers and xanax can greatly reduce the attacks if not stop them, I was told that those should't effect gall bladder attacks at all, but I'm not a doc so IDK.



posted on Apr, 16 2018 @ 09:09 AM
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My own experience:

Had stomach aches after eating something more fatty than usual. Got a ultrasound image done, saw with my own eyes (they are not that hard to see) 3-5 gall bladder stones.

I did not want surgery then. Every surgery not executed is a good surgery, I thought.

Time went on, I ate less fat.

Problem is: your body becomes accustomed to less fat, so that even a "normal" fatty portion, like you ate non fries for weeks and then a single small portion, your gall produces too much acid for you stomach, so that your gall bladder will have to act like a spill over reservoir. Which may wash out a gall stone. Which hurts very much, I know that.

...
I acted tough for about 15-18 months, but this is a losing battle, a spiral to darkness, as your body becomes accustomed to less and less fat you eat while on your fat-less diet. And then, one single slice of cheese - BAM!

I had an endoscopic surgery last fall. Having removed my gall bladder, as did my father 15 years ago and my aunt about 3 years ago. 3 days in hospital, no further care necessary.

There are no repercussions.
My risk for a pancreas cancer from a stray gallbladder stone is lowered drastically by this, too.

Do it. It is the best solution (in my opinion as a layman).



posted on Apr, 16 2018 @ 09:17 AM
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My last advice or suggestion :

Stop farting about online and see your doctor (or a third or 4th) who can take your past and present situation into consideration.

Kindest respects

Your local ATS veterinarian surgeon (buwhaaaaaa)

Lags



posted on Apr, 16 2018 @ 10:04 AM
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If you have a medical school nearby might be worth seeing if you can become a volunteer to help train junior doctors as they'll probably put you through every test known as a teaching aid and they may want to do any treatment as well if it involves surgery for free as again a good teaching aid for surgeons.



posted on Apr, 16 2018 @ 10:06 AM
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I think your answer is right in one of your posts, where you say a dinner roll bothered you,
but oatmeal doesn't! Sounds like Celiac Disease. And so many people that have it,
have had their gall bladders removed, before they were finally correctly diagnosed!

My hubby has it. It took years & I don't know how many doctors & ER trips, until we finally
found a doctor that knows her stuff! She knew immediately after asking him a few questions!
Then she ordered the tests to prove it. Blood test for gluten intolerance & a scope with
a biopsy, to get a sample of the vili in the small intestine.

You have to be very vigilant, because so many processed foods have hidden gluten in them!
Oatmeal, if there's no cross contamination, is safe. No wheat, rye, barley, bran, malt...
Some people with Celiac also have an issue with dairy. The vili make the enzyme that helps
to digest the casein in dairy. If your vili are damaged, you may have that issue also.

Do some reading about it, especially what to avoid. If you feel better...there's your sign!
You will have to eat gluten again to have the tests though, or the results will be skewed!
If it is Celiac, you will be amazed at how quickly you will feel better! And you will also know
within a half hour if you ate some hidden gluten!!!

Good luck!
WOQ



posted on Apr, 16 2018 @ 10:11 AM
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Vitamin D deficiency is commonly overlooked by doctors when trying to fix a health problem.

Apparently it is not always as easy as eating things with D stamped all over the carton, such as milk. My rudimentary understanding is that a lot of these attempts at vitamin fortification simply get bypassed in the body. D is in scarce supply in foodstuffs. I doubt that any doctor will tell you this, but the key to your health is in your gut. Before you go and ‘cut the sucker out....’

Why not read about this essential secosteroid? Chances are your doctor was asleep during the lecture, and you might learn something valuable which might nudge you back to health. Certainly if the doctors are out of their league, you are seeking outside answers; but don’t bother pestering vets, many are stone deaf, as a result of latent resentment from earning less money than MDs. Why should they continue learning about, remembering or researching, anything?

Sunshine, of course, is the best way to make sure you are getting enough D, and darker skinned
folks, due to greater melanin interaction, do not produce as much of D as light skinned peeps.

D deficiency is actually pretty common. I can totally, albeit anecdotally, speak for it. I have been feeling blue lately, and it has been cloudy, and now, snowing in mid April. Fine with me since IGAF anymore about the emergence of Spring. But, I tried some D2, D3, and plain old D just for good measure. Instantly, upon ingestion, I noted my fingertips became less sensitive to pain from peeling callouses, pads which are maintained for my medical studies (makes it easier to pick up the needles) initiative. What’s more, the peeling ceased, and new callous growth is evident! After a few doses, all pain has dispersed. Plus, I feel better, but am able to conceal it more than when I use other mood enhancers. This...is important, to me.

Then I read about D’s role in the immune system, tissue and bone strength, and how it even aids digestion by improving muscle strength in the area between the stomach and esophagus. I tried to find a link which I just saw online which cites a success story regarding reflux and D, but now it’s gone, like it was never there. I think it was Dorothy, maybe Dottie, and she had chronic (longterm) reflux. But then she took a blast of D, and her problem went away.

A-and, yes, a real doctor concurred!

But I just had to blurt out my findings, and now, since you have wasted countless years with doctors, the medical community, and I wanted to share my experience, help.... You have no idea how many dollars are linked to ideopathic mediated disease. Umm, this lobby is firmly entrenched. Make sure you get your vitamins! (Note that retinol, a B group, can be hard to find in the nonsynthetic form. Synthetic retinol is usually rejected by the body, and may even cause a deficiency. I mention this because most doctors don’t, can’t, or won’t).


I will post the link about Dorothy’s reflux and D, when I find it!

ETA: HERE IT IS! (her name is Annie) Be sure to read the last sentence from Doctor Cannell.

from The Vitamin Council www.vitamindcouncil.org...


“Dear Doctor Cannell

I don’t recall which vitamin D newsletter it was, but I do remember you were looking for people who suffer from acid reflux. Well I had been a sufferer for 5 years and decided I didn’t want to be on meds my whole life since I am only in my early 30s. Therefore, I did my research and found that by taking between 2000-5000 IU of vitamin D daily has made my symptoms completely disappear. I am happy to report that I am off meds and can enjoy foods I had not been able to in quite some time. I have shared the vitamin D news with others in my family who suffered from acid reflux as well, and they are having success being on vitamin D and off meds. I hope you find studies to support this because it works!

Annie, Wisconsin

Dear Annie:

Great news. I doubt it works for everyone and, to the best of my knowledge, no scientist has even measured vitamin D levels in the condition. However, a weak muscle is involved, the muscle between the stomach and the esophagus. Vitamin D increases muscle strength and should help the condition in some people.

Here is also an opportunity for a researcher looking to break into the vitamin D field. Simply do a cross-sectional study measuring vitamin D levels in people with gastro esophageal reflux. I bet they are lower than controls.”

So, a doctor, a real one and not some veterinarian, is willing to bet money, perhaps his whole career,
that D levels are lower among reflux patients than controls.

#966
edit on 16-4-2018 by TheWhiteKnight because: (no reason given)

edit on 16-4-2018 by TheWhiteKnight because: (no reason given)



posted on Apr, 16 2018 @ 10:44 AM
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a reply to: DigginFoTroof

To start with, anytime you feel an attack coming on or have pain try:
- pure apple juice (with the pulp, the fresh stuff you find in the refrigerated part of the grocery store). It used to help almost immediately when I had such severe attacks I ended up in emergency often
- eat artichokes and beets
- eat olive oil, drizzle it on plain bread or if you can do this, just lick the spoon. You can get olive oil that has almost no flavour but make sure it is olive oil and not some fake oil put into olive oil jars
- take milk thistle and lecithin (helps tremendously)
- There is a drug called Buscupan that relaxes the microscopic muscles in the abdominal area. It works for some, not for others
- chammomile tea can help

The gallbladder is directly related to the liver and it could be one or the other causing your pain. Or it could be something biliary. Sometimes the tests are done but there are no stones and it's just simply sludge affecting a person, or a stone has become caught in the biliary ducts/tubing and when they move through the pain eases. It could be a sphincter of oddi issue: Sphincter of Oddi dysfunction refers to a group of functional disorders leading to abdominal pain due to dysfunction of the Sphincter of Oddi: functional biliary sphincter of Oddi and functional pancreatic sphincter of Oddi disorder. It could be related to your pancreas.

I hope this helps to start with. You need to investigate, keep a journal of what sets things off, or anything that you may see as a relation to the problem. Keep a list of all doctors, test, etc. Sometimes these issues can go on for years before they find out exactly what is wrong, or what you can do to help yourself, because often doctors aren't invested in the patient and/or don't know enough about what is going on.

You need to track down an internist that does gallbladder surgeries and not just a family doctor. I hope this helps. Feel free to PM me if you need any further help and I might be able to help you.

I had my gallbladder removed eight years ago and the surgery was a piece of cake, the recovery just as easy. I can eat anything I want to now, except every now and then eggs will start the same throbbing and sharp pain in my now empty gallbladder spot. And I just go back to the apple juice, etc and they help tremendously. Everyone is different so try those ideas and see which one works for you.



posted on Apr, 16 2018 @ 10:51 AM
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a reply to: wasobservingquietly

Awesome response!

I have had all the tests for celiac disease and show as normal. However, it wasn't until I cut out all wheat from my diet did my intestinal issues resolve. At 40 years old I discovered this, on my own, by doing some digging and after endless visits to the doctor, stool tests, allergy tests, the upper G.I. scope and biopsy, the blood test, etc, etc. Ever since a little child my stomach has been a severe issue, constant diarrhoea (uncontrollable), not able to lose weight as much as I couldn't keep a meal in my stomach for weeks, for all the diets, the endless hours of exercising, the healthy eating plan, the fad diets, the many trips to the doctors (one told me to stop eating so much and to exercise more). Cutting out bread products was harsh, but I managed and it was like a light switch had been turned off. Instant health, my joints no longer ached, I had more energy, the brain fog lifted, my stomach no longer bothered me and the weight started to fall off.

There are many grain products some who are gluten sensitive can eat but I find oats to be almost an instant trigger. Oats are supposed to be okay for most to eat. So just be aware everyone is different and you have to find what you can and cannot eat if this is an issue for you.

Once you discover the difference in life you will never go back



posted on Apr, 16 2018 @ 10:57 AM
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originally posted by: Lagomorphe
My suggestion as a veterinary surgeon... I understand and respect your shout for help :

Contact a real life doctor who can discuss with you... « feel you up so to speak », read, study and analyse your personal medical history...

stay WELL AWAY from armchair wannabe people who think they have the best intentions.

Kindest respects

Lags


I was going to recommend leaches and a mustard poultice.




posted on Apr, 16 2018 @ 11:03 AM
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a reply to: NerdGoddess

This is terrible!

When I was in having my gallbladder out the nurse told me of her daughter that was 8 at the time, and she was aways sick, always complaining of pain, and all the tests showed fine. Then one day, during another event, there it was: an orange sized stone in her gallbladder. The nurse may have simplified the account for me but she said they were stunned that an 8 year old would have such a huge gallstone.

I struggled for six years with mine and all the tests were fine. Between the span of a year from one ultrasound to another they found a bunch of "floating" gallstones. They were amazed they could form to such a degree in such a short period of time. They told me it must have been sludge that just didn't show on the previous tests.

Untreated gallstones can cause scarring in the biliary ducts (depending on if the stones are getting stuck in them) - and I don't mean to scare you, but it was the best decision and one I am thankful every day of to have my gallbladder removed. It was removed laproscopically and I was at home the same day.

I had the sternum pain where I couldn't breath in due to the severity of the pain, the upper right shoulder pain and the upper right rib front pain all at once. Severe vomiting, diarrhea, fever, blacking out. I should have called an ambulance a few times but after rushing to emergency and sitting in the waiting room for six hours, and another time for twelve hours, I just assumed there was no point in calling an ambulance. Could have died.

After all my investigations I realized a stone was getting stuck in the tubing behind my sternum. I would be at what felt like utter death about to occur at any second, there was no functioning or thinking: it was pure survival of just breathing and tuning into the pain and only being one with the pain, and then I would feel a "click" in that sternum area inside me, and then I would be back to PERFECTLY normal.

Don't suffer. 27 may be considered young by the doctors... but at 27 you are living life and wanting to do the things young people do - go out and enjoy life and be whole and healthy. Get that sucker removed! I have made two other responses in this threat, check them out as there may be something that helps in the meantime.



posted on Apr, 16 2018 @ 11:50 AM
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a reply to: DigginFoTroof

Hey! Your story is really relatable, I'm actually going through the EXACT same thing right now. I've been through test after test. Mine has been an ongoing issue since I was a child. Except my symptoms differ. I get really dull/grinding pain in my upper abdomen near the peak of my diaphragm, it spreads across my entire upper abdomen from right to left. The pain stretches around my right side into my back and causes numbness. The pain gets so bad sometimes that I can't even talk, or process thoughts. My girlfriend gets worried sick about me and is asking me questions and I can't even hear the words coming out of her mouth because of the pain being so bad.

I had a serious attack last year and had xrays done, the first doctor said I had galstones and that they weren't blocking my biliary ducts so I would need an ultrasound to see what the next step is. Well, after a week my symptoms subsided and i've been feeling okay for the last 12 months. Well, come about 2 months ago, it starts acting up again, i'm having constant pain, day in and day out. Nothing has been helping me, i've had to call off work because i've been vomiting and having uncontrollable diarrhea. This condition has put me on thin ice with my employer at one of the best jobs i've ever had.

I finally went about getting a CT scan after going to the emergency department, and getting bloodwork, an ultrasound, etc. Everything came back fine for my gallbladder, my gallbladder has "no stones" apparently, isn't inflamed and the pain doesnt seem to be coming from there, even though all my pain is centralized to my upper abdomen/partially to the right.

So after visiting several doctors I've got a HIDA scan scheduled and been put on some test medicines to see if they help at all until I get that done.

If you get the chance, ask your doctor about a HIDA scan, the HIDA scan injects a radioactive tracer into your blood that gets sent to your gallbladder and gets processed through the bile ducts there, it tests to see if your gallbladder is producing bile or not. You could have no issues with the stones themselves but your gallbladder might be under producing bile, leading to your pain in vomiting in your upper abdomen, primarily from the stomach due to the lack of bile and the rough time it has breaking down foods.

I'm currently waiting to get mine done first thing next month. I've just been doing what I can to help with the pain until then. Theres not many options but waiting for the right answers.

I hope you get yours figured out soon, because this pain has been driving me crazy.



posted on Apr, 16 2018 @ 12:41 PM
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Do the baking soda test to see if it is really acid. If you do not bloat or burp, than maybe there is a problem with too alkaline of a stomach acid. Chloride is needed in food to make acid, plenty in some veggies, and in real salt.

Taurine can help with gallstones sometimes. You do not need much. Magnesium enzymes are needed for taurine production from non meat foods. So is a functional sulfite oxidase and B6. Manganese is needed in there somewhere too, or you can just eat meats, then all you need is sulfite oxidase and dehydroginase which require molybdenum containing foods. If stomach acid is too low, the minerals may not be taken out of foods though.

Taurine is used by the liver and put into bile and helps with gall stones. It is not a miracle though, but it does help to disolve them somewhat. There are also other ways that clear gall stones, I know a couple of people who used a lemon juice combo to get rid ot them. I do not remember what it was made of only that it worked. Again, sulfite oxydase is needed to properly utilize lemon juice, it is a high sulfur chemistry. The molybdenum coenzymes are needed.

Taurine is also a sulfur amino acid and that is why it needs adequate sulfite oxidase.

Try to identify what the problem is, sodium is necessary in the chime excreted by the liver to help neutralize the stomach acid, The liver produces a sodium bicarbonate chemistry, which is fueled by sodium and carbon from food digestion and carbon dioxide created in the body if I remember right.

Finding the right kind of doctor is important with this, some specialists know how to fix the problem. I do not know how bad your kidney stones are, evidently you do not know either from your post. Celiac disease and too much lectins in veggies can also cause a similar problem. Some lectins are also in grains. Also, if you have been taking a lot of magnesium, you could be a little deficient in calcium and that will cause some problems. I don't know if that particular deficiency of calcium has those symptoms though, usually an imbalance that way causes discomfort in the gut and sore joint areas around the body. Sometimes antacid chemistry can cause lots of other problems in the body.

These are just some ideas to kick around in your search to find the cause. There are specialists that can help you with this in the medical field, ask your doctor if he knows one. Make sure to tell the specialist what you are doing with the stomach acid treatment, they also administer a test similar to the baking soda one to test stomach acidity. Too much fluoride in the diet can cause some upper stomach valve problems too, Hydrogen fluoride forms and is corrosive.

You could have a lot of different types of things going on, see a gastrointerlalist or whatever they are called.
edit on 16-4-2018 by rickymouse because: (no reason given)



posted on Apr, 16 2018 @ 03:09 PM
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a reply to: DigginFoTroof

So sorry that you're having these issues.

Any good GP (general practitioner) can work with you to get you to the right specialists and talk with you afterward about the findings. There's a number of possible explanations here.

WHAT I WOULD RECOMMEND:
* sit down and write a "diary" of an attack. List as many as you can (dates) and length and what you were doing before the attack. (when you come in with data like that, it makes diagnosis easier.)
* include all known issues (things that you are taking, things you've eliminated from your diet, a typical day's diet.
* include blood pressure readings or readings from a pedometer/phone (info about how much activity you are doing... and in my case I have a Fitbit, so I also give information from the watch about how much I sleep, how active I am, and what my heart rate is.

If you don't have any of this, sit down and start keeping records.

To find a doctor who listens to you, just google for doctors near you. Yahoo pages have reviews... you can find a doc with a number of positive reviews and give them a try.

And I'm sendin' ya some tons of good mojo. Find out what it is and get it licked, muy pronto!



posted on Apr, 16 2018 @ 03:13 PM
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...adding that I do recommend a Fitbit or similar wearable device if you have weird medical problems. Mine caught an undiagnosed rapid heart beat that only occurs irregularly and would never have been caught until (as with my mother) it landed me in the hospital with v-fib. We caught it early and it's under control, but it had caused me problems in the past.

They're relatively inexpensive and waving the data at your doctor can make it easier to assess how meds are working and determine what else might be going on.



posted on Apr, 16 2018 @ 08:13 PM
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a reply to: DigginFoTroof

Also, I don't know what idiot Dr. you are seeing but there is, in fact, a definitive diagnostic test for gall stones. It's an ultrasound, an abdominal or gallbladder ultrasound.

I don't know what in the hell you're mucking about with, but good lord. You're Dr. is full of it. Ask for the dam ultrasound.

My gawd. This could kill you.



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