originally posted by: EvidenceNibbler
a reply to: rickymouse
I have sub clinical gluten insensitivity. I had been tested by doctors on two occasions for celiac which proved negative. Cutting gluten out of my
diet was essential for my health, but the doctors were no help there. The tests they did indicated gluten wasn't a problem. Ultimately we are
responsible for our own diets and knowing what we can and cannot eat.
I see you mentioned you have kidney issues, what is it, and how did that develop?
When I was in a car accident, I got temporal lobe epilepsy from it. The meds I took were not very good on my health, some made my teeth push up and
they broke off, one actually increased my seizure activity. I found from genetics that I can not tolerate the five medicines they used for different
reasons, I almost lost my feet, they were all black and swollen for a couple of years of the five years I took the meds. I now control the seizures
by diet, using some of the same chemistry as the meds in rotation. That twenty five hundred bucks a month in meds was replaced with about twenty
bucks a month of the foods that are the basis of the meds. Except for the sodium valproate, it blocks sodium use by the body with completely
synthetic chemistry action. Two of the meds caused most of the problems. Also, they put me on Bextra for pain, that was hard on the kidneys, I was
rushed to the ER from the doctors office, my BP was way too high. Bextra was found later to raise Blood pressure to dangerous levels.
I know two other people who wound up on dialysis from taking the valproate. It is a side effect of the drug in some people.
My liver pretty much recovered, I used milk thistle to try to help that and it seemed to clear up the pain in the liver. I do have less enzyme
production though. I was constipated badly after the accident, all the way thorough the five years on meds and it damaged my guts. It took about
five years after I was off to get away from the black stools which meant that I was bleeding somewhere in the intestines. I still have residual
problems with the large intestine, but I will live, it just does not push things through very good anymore. Fiber does nothing, the liver damage
seemed to effect the amylase production pretty much, I always had a problem with eating fiber, it just got worse. Part of it may have just been a
reduction because of age too, I will never know for sure.
If I try to control my temporal lobe epilepsy with one chemistry alone, I wind up with side effects. I cannot use strictly cabbage chemistry, nor can
I use a high fat diet completely. I also can not use only asparagus chemistry. Magnesium supplements do help one part but not the effect on the
muscles, they spasm if I just try to use magnesium, getting stuck on or something. From research I found that magnesium does not fix all of the
signal problems. I also can't eat a lot of sweets, sugar can increase seizure activity. I learned all this because I had to research how to fix my
problem, the neurologist saw the meds were killing me, I wanted to keep trying but she said she did not want to see me die. Controlling it by diet is
not so convenient as taking a pill, but I have no options in the matter.
Most of these meds are not tolerated by far northern Europeans. The Pharma companies know that, I saw the information on their drug testing results.
Less than half of the Laplander and Swedes and finns and Norwegians can tolerate them. Well, I found out I am not a minority in it if I lived in
Northern Finland. I would guess it applies to many people around here who are offspring of that bunch of Scandinavian people.
I don't blame my neurologist, she had no way of knowing, my regular doctor kept giving me more and more meds for everything, and sending me for every
test she could send me for. Between our health insurance and the car insurance, I was a cash cow. This is how I know about this kind of stuff, from
experiencing it first hand.
I should go see my neurologist to see if she can suggest any other chemistry that would work in foods. I am kind of sick of cabbage and asparagus and
greasy sausages and meats. The rest of the cruciferous veggies do not work well to control my epilepsy for some reason, they also cause me some
serious problems if I overeat them. They block folate, I already have genetic problems with folate metabolism.
Oh well, the Sodium valproate actually hurt my kidneys I have concluded, I will just have to live with it. I have a good doctor now, I told him I am
intolerant to a lot of meds genetically. I can take anything for a couple of weeks, but I cannot even take multivitamins for too long.
I will eventually find a way to help the kidneys heal, I am going to keep trying the taurine, it does reduce my urination somewhat. But it does not
fix the problem, according to medical research it should be able to stimulate repair of the kidneys to a point. I have been having this issue for
many years now, I am a lot better now that I know I pee everything out and know how to supplement things. It takes years to figure out how to
compensate correctly and identify deficiency symptoms as they apply to me.
I talked to a woman I know who works as a nutritionist for people who do dialysis. I learned some things from her, but she learned a lot from me on
how to live with it. I kind of impressed her a little, I would like to discuss it more with her some day out in the blueberry patch three miles away.
I know her from years ago, I did not know she was not a specialist in that. I will have to see her some day to discuss things with her, maybe I can
get her to think out of the box that medicine has stuck her into. Maybe she will be able to discuss it with her colleges and adapt their practices to
help people with my particular kidney situation for a while while they wait. But I still have more to learn yet, testing on oneself takes a lot of
time and a lot of research.
For now, I can live with my type of kidney damage. I have lived with it for over eight years now.