posted on Nov, 30 2017 @ 04:31 AM
I'm very sorry you are having to go thru all this.
All I can offer is what I know from navigating the medical world ,multiple family member's surgeries.
1) Surgeons are cutters. It's what they do, and are trained do. So of course any solution will involve cutting.
2) Educate yourself about some of your past procedures. JAMA is a medical journal and with all you've had done it's VERY
possible your previous Doctor has written an article regarding your past surgeries. Of course you wouldn't be identified by name, but you may find out
more information you weren't aware of this way.
There are more medical publications out there and maybe someone here can help name them?
3) You sound like you know what most of the problem is, so now it's time to double down and dig in to learn more about Post Operative outcomes from
any and all procedures that may possibly help you.
Surgeons are great at the cutting, but usually suck at post operative care and don't pay as much attention to quality of life afterwards. If you
survived the operation, well hey! They did their job. However if you're worse off or complications set in that doesn't do you any good.
Any good Surgeon will and can tell you percentages of patients who's functions improved, stayed the same or were worse off after surgery. You usually
can google a Doctor and look up any legal suits they have been involved in. It's usually public record.
The reason I say educate yourself is the more you know about what possible surgical options you may have and the TYPES of surgical options than you
are better equipped to make your own decision. For example Most Ortho Surgeons
CAN operate for disc/back problems, but in reality Neurosurgeons have better long term outcomes. Altho you'd think of them as just "brain Doc's".
For major surgeries you usually have to be "cleared". What this means is a cardio stress test, pulmonary testing and a few others to rule out
unexpected problems in surgery. You will be under anesthesia so there is a need for pulmonary function to be accessed.
YOU are your own best advocate!
Researching all this is work, but just going in an asking a Doctor to "fix this" to me is unrealistic. They can only do so much and you know you
better than anyone else!!!
You said the Doctors aren't answering your questions to your satisfaction. OK THEN!
Are you asking smarter questions?
In a consultation you are one of many in a Doctor's day long trail of patients. By learning some medical terminology and knowing what outcome YOU NEED
you jog them into things they know but forget to verbalize. You get a better diagnosis and it helps both of you. Make them go over your chart WITH
you!!! They "skim" and sometimes miss things.
Hope this helps.
It sounds like I'm tossing this back on you and 80% I am because you are who this affects. The more educated you are the better a Doc can help you.
The more specific you are the more information they can get into with you.