a reply to: silo13
From one battling Cushings herself, I can tell you that many doctors are quick to dismiss a Cushing's diagnosis, but after chasing our tails for
years, my final diagnosis *IS* Cushings.
5'9" and active, I've always maintained a healthy weight of 140-145, but three years ago I began gaining extreme amounts of weight, (210 lbs in 2 1/2
years) Despite the same 800-1200 calorie diet I've maintained for years, I had ZERO energy to do anything, I suffered a major heart attack, was
diagnosed as diabetic, my cholesterol was through the ceiling, I developed severe tremors in my hands and feet, suffered frequent memory loss, and all
the doctors wanted to do was tell me that my caloric intake was the problem, and they proceeded to load me down with more than a dozen medications to
treat the symptoms rather than cure the illness.
About six months ago I saw a new endocrinologist who immediately decided to test me for Cushings. We went through the saliva test, the dexamethasone
suppression tests, reviewed a recent MRI for signs of a tumor on my pituitary, then he ordered a CT scan of my adrenals. In the end, while my
original doctor wrote off Cushings because of a clean MRI of the insides of my brain, we did find a 6cm melanoma on my left adrenal, leading to a
diagnosis of Cushing's SYNDROME. (not to be confused with Cushing's Disease, which is centered around the pituitary)
Due to the deterioration of my health, my endocrinologist prescribed Korlym to offset the effects of hypercortisolism, but such treatment is very
expensive. (30 days worth of Korlym runs approx $57,000 bucks) Thank god the VA pays for most of my meds. (I pay $15 /mo) With a little luck I'll
be ok'd for adrenalectomy soon, and I hope to get back to living life.
Don't give up, and don't let one doctor write off potential diagnoses like Cushings.
edit on 12-6-2017 by ArdentAngel because: (no reason