posted on Jun, 30 2016 @ 08:06 PM
I am not asking for binding professional advice, as this is not the place. But a doctor giving an opinion would be helpful.
My mother was given 6 months to live probably 8 years ago. Thank god she is alive, I am told, often doctors will state this so someone is fast tracked
for hospice care and covered home care, etc,. even if they believe it may be a lot longer as they see the obstacles that will come.
She has liver disease. Less than 1/4 of her liver left, though her liver did do some regeneration even if that percentage normally means it will not.
She was taken off of the transplant list due to scores that showed some good function. She is consistent with her medications and diet. There have
been complications, such as a failed hip replacememt. The replacement was removed and replaced with an antibiotic infused 'placer'. For over 2
years, the hip has been infected and that precludes another shot at the surgery. There is a lot of doctor and after care facilities that have failed
in helping that. She has been back and forth to hospitals, her home, after care physical therapy homes, etc. She is often hospitalized for pneumonia.
This time is different. It is septic pneumonia. She called me 4 days ago to say she was going to the hospital. She was having trouble breathing and
thought she had pneumonia again. She was in her right mind, her speech was clear, meaning her ammonia levels were normal.
As usual, within 2 days of being in the hospital, she got worse. It is a combination of even the ICU in a suburban hospital not comminicating with
her doctors about required meds and opportuinistic infections in a hospital. What was 'pneumonia with some fluid in the lungs' changed to septic
pneumonisa quickly. Her entire body swelled up and her BP dropped dangerously. Her BF found she was not being given several medications that keep her
alilve, including a diuretic. The first night I called, I told the ICU nurse to give her lactulose and not wait for ammonia levels to drop. The nurse
brushed me off, said the levels were fine. 3 hours later, my mother called me with slurred speech and barely an idea of where she was.
I have read that even people that are healthy beforehand that get septic pneumonia have as much as a 50% chance of fatality from it. My mother's
entire body has swelled up from the septicemia.
I call often, but I should not go there. I am in an orthotic boot from my foot fracture, that is likley a germ farm as I have gotten it wet a couple
My aunt goes. My aunt says my mother is in a lot of pain and is frightened, which is not normal for my mother. She is 63. She is used to hospitals and
Hospitals, in general, have only added to her main problem upon admittance, historically speaking.
I don't know what to think or say when I call, other than check that her meds have been given, which are a lot. Nurses on different shifts-some seem
to know what I am saying and some have no idea.
There is really no better hospital to move her to, I am just afraid that leaving her there is a big risk.
Any medical opinion?