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Is There a Doctor in the House? (In regard to my mom)

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posted on Jun, 30 2016 @ 08:06 PM
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I am not asking for binding professional advice, as this is not the place. But a doctor giving an opinion would be helpful.

My mother was given 6 months to live probably 8 years ago. Thank god she is alive, I am told, often doctors will state this so someone is fast tracked for hospice care and covered home care, etc,. even if they believe it may be a lot longer as they see the obstacles that will come.

She has liver disease. Less than 1/4 of her liver left, though her liver did do some regeneration even if that percentage normally means it will not. She was taken off of the transplant list due to scores that showed some good function. She is consistent with her medications and diet. There have been complications, such as a failed hip replacememt. The replacement was removed and replaced with an antibiotic infused 'placer'. For over 2 years, the hip has been infected and that precludes another shot at the surgery. There is a lot of doctor and after care facilities that have failed in helping that. She has been back and forth to hospitals, her home, after care physical therapy homes, etc. She is often hospitalized for pneumonia.

This time is different. It is septic pneumonia. She called me 4 days ago to say she was going to the hospital. She was having trouble breathing and thought she had pneumonia again. She was in her right mind, her speech was clear, meaning her ammonia levels were normal.

As usual, within 2 days of being in the hospital, she got worse. It is a combination of even the ICU in a suburban hospital not comminicating with her doctors about required meds and opportuinistic infections in a hospital. What was 'pneumonia with some fluid in the lungs' changed to septic pneumonisa quickly. Her entire body swelled up and her BP dropped dangerously. Her BF found she was not being given several medications that keep her alilve, including a diuretic. The first night I called, I told the ICU nurse to give her lactulose and not wait for ammonia levels to drop. The nurse brushed me off, said the levels were fine. 3 hours later, my mother called me with slurred speech and barely an idea of where she was.

I have read that even people that are healthy beforehand that get septic pneumonia have as much as a 50% chance of fatality from it. My mother's entire body has swelled up from the septicemia.

I call often, but I should not go there. I am in an orthotic boot from my foot fracture, that is likley a germ farm as I have gotten it wet a couple times showering.

My aunt goes. My aunt says my mother is in a lot of pain and is frightened, which is not normal for my mother. She is 63. She is used to hospitals and normal pneumonia.

Hospitals, in general, have only added to her main problem upon admittance, historically speaking.

I don't know what to think or say when I call, other than check that her meds have been given, which are a lot. Nurses on different shifts-some seem to know what I am saying and some have no idea.

There is really no better hospital to move her to, I am just afraid that leaving her there is a big risk.

Any medical opinion?




posted on Jun, 30 2016 @ 08:12 PM
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Reldra...I'm so sorry about your mom.
I know that doesn't help...but I will send positive thoughts your way.



posted on Jun, 30 2016 @ 08:12 PM
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a reply to: reldra

Sorry to hear such things... I am no doctor, or a nurse but i work with both very closely...

A few things i've learned...

1. Doctors are mostly idiots

2. Nurses are not much better... sometimes worse

3. Hospitals are usually bad news for anything serious.

90% of the time when we send one of my residents to the hospital here in Niagara, they come back worse off then when they went in... and Canada supposedly has some of the best health care in the world... (HA!)

All i can say is find a Doctor that actually cares about people... they are few and far in between...

I wish you all the luck in the world


edit on 30-6-2016 by Akragon because: (no reason given)



posted on Jun, 30 2016 @ 08:16 PM
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No medical opinion as I'm not qualified, but a question. I know during my father's final illness the existence of a "Durable Power of Attorney" (which is actually a temporary power of attorney) and a"Health Care Directive," which we had executed years before, allowed me to even talk to the hospital. Otherwise I would have had no say whatsoever in his care, but because of those documents I was able to get him out of the hospital (totally with their help) and into nursing home care. Do you have that stuff going for you?



posted on Jun, 30 2016 @ 08:19 PM
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TY IMTAT and Akragon


I have told her to get a whole new set of doctors, but the insurance obstacles and time are difficult for her to overcome.
I advised she switch from the Kaleida system here to Catholic Health system. The Catholic System ( I am not religious lol) has a higher rated hip replacement center and I go to them for all of my, obviously lesser, orthopedic needs. They seem more accessible and just did a multi million dollar upgrade of everything. That system would be covered by her insurance. I think it is the time to make sure that move is made.



posted on Jun, 30 2016 @ 08:19 PM
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a reply to: reldra

Contact a patient advocate and tell that person just what you told us.



posted on Jun, 30 2016 @ 08:25 PM
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a reply to: schuyler

My younger brother who resides several states away, is her healthcare proxy. It made more sense to her in the beginning as he is financially well-off. She has talked to me about making us joint proxies. He and I don't get along famously, but that will need to be done too. Her BF has something in regard to 'healthcare directive' as he lives with her, handles her meds and appointments. She has no power of attorney given to anyone. She tells the hospital to speak to me and to listen to me and a password is required upon calling.



posted on Jun, 30 2016 @ 08:28 PM
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a reply to: DBCowboy

That is a good idea, too. I did that a few years ago, come to remember. It was about smaller things, though. She is a vegetarian and they kept bringing her meals with meat. She asked the on call minister to read some catholic thing he didn't want to with her, he was a Baptist. Both worked out, her meals were changed and I had a long talk with this minister who did acquire the things she wanted read to her and he did it.



posted on Jun, 30 2016 @ 08:30 PM
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a reply to: reldra

if your mother is with CHI (catholic Health Initiatives) then that person would be a "Patient Representative".

Good luck.



posted on Jun, 30 2016 @ 08:32 PM
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a reply to: DBCowboy

She is not in a catholic Health System hospital atm, I am not sure what CHI is.
edit on 30-6-2016 by reldra because: (no reason given)


I will look it up. In case the same problem arises at this hospital.
edit on 30-6-2016 by reldra because: (no reason given)



posted on Jun, 30 2016 @ 08:49 PM
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a reply to: Akragon
I guess we get what we pay for. Medical care has become a commodity in America. It is all about the bottom line.

When you have doctors being told what they can do, and can't do, based on a computer algorithm, and nurses being forced to care for eight plus patients, per shift, while barely making above minimum wage, you will see all the good doctors and nurses leaving for jobs that may not pay more, but don't make the same ridiculous demands.

Reldra, it is going to be difficult to know what is actually going on from a distance. My best suggestion is to speak with her primary doctor and let him know your concerns, and find out from him, what is going on with your mom, and his take on the situation.

Hospitalist and Specialist are primarily, forced to deal only with the signs and symptoms that your mother is actively presenting. If they have no previous history with your mother, they will need information from the primary doctor on what is best for your mother's care.



posted on Jun, 30 2016 @ 08:52 PM
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You sound like a great daughter...

Sorry Moms not well.

She is lucky to have you.



posted on Jun, 30 2016 @ 08:55 PM
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a reply to: NightSkyeB4Dawn

Primary doc is halfway retired and holds local political office.

Where she is, it is a wealthy suburban hospital with 7 beds per each ICU and several nurses per each ICU. Yes, there are several ICUs in that hospital. No nnurses there are making barely above minimum wage.

By this time, all the history has been sent, by her 5 doctors.

Confusion still prevails there and mistakes.

It might be her internist that is best to deal with. I will check with her BF.



posted on Jun, 30 2016 @ 08:56 PM
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a reply to: whyamIhere

ty
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posted on Jun, 30 2016 @ 08:56 PM
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I dont have a medical opinion . However , as having been through the same situation twice (nearly) I would contact a specialist and have him/her go to the hospital to review what is being done , and what needs to be done.

Only thing I can offer .



posted on Jun, 30 2016 @ 08:56 PM
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a reply to: Gothmog

Maybe her internist needs to be pushed to go. TY.



posted on Jun, 30 2016 @ 08:59 PM
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It doesn't sound too good for her with the septic Pneumonia. I am not a doctor, but I know some things about diseases. Some medicines raise your risk of getting pneumonias. That is a side effect. The medicine is probably necessary in her condition though, the long term infection isn't such a good thing to have.

She is only sixty three, kind of young to be having all those problems. I would see if you could find someone to reevaluate her meds. There are special doctors that do that. There could be some recognizable problems to someone who does that sort of thing. I can't remember what the name of those specialists are.



posted on Jun, 30 2016 @ 09:02 PM
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a reply to: reldra
My problem followed along the same . Had the 4 lower lymph nodes removed. No one told me the fluid left over could become infection. I passed it off as the flu until my fever was past critical level and I was in so much pain that I couldnt move. Long story short , went in to the local E.R . and my wife called the specialist in Atlanta. He was there in no time at all to save the day.(and me)
Wishing everyone the best



posted on Jun, 30 2016 @ 09:02 PM
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a reply to: rickymouse

I will look that up, ty.



posted on Jun, 30 2016 @ 09:05 PM
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a reply to: NightSkyeB4Dawn


I guess we get what we pay for. Medical care has become a commodity in America. It is all about the bottom line.

When you have doctors being told what they can do, and can't do, based on a computer algorithm, and nurses being forced to care for eight plus patients, per shift, while barely making above minimum wage, you will see all the good doctors and nurses leaving for jobs that may not pay more, but don't make the same ridiculous demands.


Well we don't pay for anything in Canada as far as Health care is concerned... but regardless the system we have is still a mess. Nurses are paid very well... but unfortunately all they do is doll out meds. They're literally useless in my profession, yet they get every bit of the credit for the things that myself and other workers actually do.

Doctors are OVERPAID across the board... and that is the biggest issue... Most of them get into the medical field because they will be rich one day when they finish their schooling.

I know a few Doctors that love their patients, and they're wonderful people... but they are almost non-existent.

The nurses in the local hospital actually do the work that i do...
(brand spanking new facility with all the bells and whistles... looks like a bloody airport)
and most believe they are above such things because of their education... Thus the poor treatment of patients that come in... they get ignored, and return to my home with the problem they had fixed, and a whole new stack of problems caused by their lack of attention in the so called Hospital.

I had to send my grandmother to this place a few years back because she had a mild case of pneumonia... We took her to my doctor who is actually quite good but over worked... He told us that she should be in a hospital, but IF we send her to the new one... She WILL die.

In my rage about said situation i needed to write a thread on it... I tend to unload on ATS because it is my only stress outlet... I am the stress punching bag for my friends and family in real life

RANT!!





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