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originally posted by: evc1shop
a reply to: Anyafaj
Thank you for sharing your story... In the kindest way possible, I would like to wish your child all the best that is left in this world.
My sister has a son with Becker's muscular dystrophy and a few other things and it just tears at my heart to watch him at age 6 just having his feeding tube (failure to thrive) removed and finally getting to feel normal (as normal as possible) around kids at the playground and pools all the while knowing that his muscles are just about to peak and they are already planning for his leg and back braces that he will need starting in a year or so.
Children are so precious and really need us parents to guide them whether it is full hands-on or gentle suggestions here and there, I know it all helps them grow and cope with things. I am still sorting out when and which things my son needs my input and my ear the most and how much of each.