Scary DR and CAT scan

So I have been having REALLY REALLY bad head aches almost migraine like. I went to a Neurologist who works with the eyes and brain. He had my brain scanned and everything came back normal as far as and defects or illness goes.

He called me and my family into his office to go over the results and treatment option for my headaches. My apt was about two weeks away from this phone call, I had a few more head aches and had my first seaziure, not fun.

So we go into his office and I tell him what happened sense the lsat time I spoke to him. He prescribed me clonazepam for the seizue and a pain medication and anti migration medication.

He then said I want to show you something we found on your scan, I was sure it was going to be cancer or some illness. Right at at the top of my brain stem was a glowing white ball. I asked him what it was and he said he had no idea…I laughed and he looked right at me and said “I have no idea what it is or how it got there”.

I don’t buy into the whole implant thing but I saw the scan of my own head with something a prestigious local dr could not ID. His whole professional life has been spent looking at people brains/eyes so if any one should know what it was it should be him.

I’v had allot of strange UFO type sightings in my life but ZERO waking abduction memories, just thought I would share.


he said they would mail me a copy of the scans on a cd. when I have them ill upload.

Time for a second opinion. I don't know is not a good enough answer.

Shot in the dark. Any sugar free stuff? Aspartame or any other thing with other name that are actually the same thing?


articles.mercola.com...

a reply to: penroc3

That is interesting, my husband went to the doctor complaining of problems with hearing and after having a brain scan they found also a white littler cist in his medulla, like a littler round ball. The doctor told him not to worry about it, as this things are genetic.

But in you case you are experiencing head aches and seizures that is something to be concern about.

get back to us when you can prove it.
until then, fun story.

originally posted by: jackjoedoe
Bull#. (Just in case ATS censors that) I mean to say the stuff that comes out of a bulls butt.

There is no way any doctor would give you that kind of answer.

Depends on the doctor. I have got the answer before.

My mother had that answer for months for chest pains and a hard time breathing. Sent home with ibuprofen every time.

I got tired of hearing about that doctor incompetence.

Told here to go to emergency and get scans.

That day they told her she had cancer so bad she had 6 months to live and that her lungs were 3/4 full of fluid.

She died a few days short of the six months.

originally posted by: IShotMyLastMuse
get back to us when you can prove it.
until then, fun story.

How non compasionate and rude. Act like she is telling you something not real. Why make up something wrong with your brain.

a reply to: roth1

I did not know compassion was a requirement for posting on ATS. I thought denying ignorance was the moto...

originally posted by: jackjoedoe
Bull#. (Just in case ATS censors that) I mean to say the stuff that comes out of a bulls butt.

There is no way any doctor would give you that kind of answer.

First of all, this isn't a very constructive nor appropriate way to address the OP's post...

As for your opinion? As an actual medical professional, I find your comment to be complete BS...

When doctors have no idea about something they do, in fact, admit as much. I am sure the CT scan was read by a radiologist and that person, also a physician, mentioned the anomaly in his or her report. Unless they were able to diagnose what it was, they would also probably say they didn't know (for lack of a better term).

Doctors are not in the business of diagnosing something unless they are pretty sure they know what it is, especially in the OP's situation.

I would bet your case will be presented in a "grand rounds" type of setting and shared with medical students and other physicians as it seems to be quite unique. Having the input of many other physicians and even students and residents would be helpful in this situation. I just hope your physician is affiliate with a teaching hospital.

If you were me or you were my loved one? I'd suggest another opinion, as well as asking the ordering physician (of the CT scan) send you for an MRI/MRA of your brain, brain stem, and cervical spine. Something is going on in there...especially if you have had a new onset of seizures. If you get another opinion, look for someone who specializes in brain stem diseases/disorders.

If you must travel to do so, do it. Sometimes the right doctor may be in another town and state but if they save your life and make your quality of life better? It is worth it, IMHO.

BTW, OP did they give you any IV dye (contrast) for the test? It would go into your vein and cause a warming sensation all over your body as is was delivered. In short, you'd know if you got it or not...

Sorry your going through that scary experience. People prob get tired of hearing bout this but is there any gluten allergy in your family that you know of. Gluten allergy can give people bad head aches as I know from experience, my father is a lot better off not eating gluten and my brother who I wish would try being gluten free developed epilepsy at 39 and I have read a lot of info on the net which I won't quote sites as you can google it if your interested, that gluten allergy and other allergy can cause seizures. Good luck with you glowing ball and do get another opinion. Also aspartemain or however you spell it as another post mentioned is also an evil thing to put in your body.

Yeah one other instance.

I was having seizures myself many times a day. I quit working. I was afraid to drive.

Was charging my credit card going to the hospital for scans. Seeing the top expert in the area ( head neurologist, director at a major hospital )

Had every kind of scan, therapy with exercises appointments 2x a week.

After about six months.

I had made an appionment for the main Nuerolgist again.

He was not there. Another doc offer to see me.

Sat there reading the chart in front of me. Then said. Why are you here?

I said because i am having seizures.

He said that i am wasting my time there with that doc.

WHY!!! I said

He said it said in the chart that the doc wrote that he though i was making it up.

I went and found a different doc and got it under control

I wasn't working and was pissed that he kept me coming, thought he should have been honest right off.

So i filed Bankruptcy on almost 12k bill. Wasn't going to pay for leading me on.

He not only did not know what it was, but he played games with me and wasted my time.

So, Op did not dispute she did not know ( ignorance ) She is not a doctor. That is why Op is asking and posting. Some help you are. Nice that you discredit the same as the doc. A second opinion is in order. Most people do not go to the doc because the have nothing better to do. Not my idea of fun. Have you ever had a seizure you would be scared. I know i have. a reply to: jackjoedoe

a reply to: lovebeck

the OP didn't tell the whole story. So I call bullshevic. There is no way any reputable doctor would have let the fact that the patient had an unknown mass in a CAT scan go undiagnosed, knowing that it existed.

The is something missing to this story.

a reply to: jackjoedoe
you didn't get the memo?
it changed to "entertain fantasies" a few years ago

Usually when one Doctor isn't sure about something they send you to a specialist of some kind. I would say get a second opinion like others have suggested. Keep us posted on what's going on and good luck!

a reply to: lovebeck


I started out at my PCP for the head ache and he sent me to see this eye / neurologist. got my scan, He told me he didn't know what it was but it was nothing to worry about and was very small.

I have another scan in 90 days to check up on it. but he assured me it was nothing to worry about but couldn't tell me exactly what it was.

i'v only had one seizure and haven't had one sense.

they gave me maxalt to take if I feel a headache coming on and it works very well at stopping them in there tracks.

as far as contrast I did not get any for the scan. I was under light sedation but im pretty sure I didn't get any.


jackjoedoe

why would I lie on the internet? I thought it was a interesting find and seeing as im/were into paranormal stuff here I thought it would be interesting to share. As soon as I get my CD I will post it here.

and as far as me not telling the whole story? what else is there to tell?

a reply to: penroc3
Sound like you may have obstructive hydrocephalus due to cysts of the thalamus or Thalamic Cyst.
Hydrocephalus Symptoms
Of course i do recommend a second opinion from a specialist before anything.

originally posted by: jackjoedoe
I did not know compassion was a requirement for posting on ATS. I thought denying ignorance was the moto...

originally posted by: IShotMyLastMuse
you didn't get the memo?
it changed to "entertain fantasies" a few years ago

I don't believe that either one of you "got the memo". Posts in the Gray Area are for personal experiences. In other words, no one owes you any proof in this section of ATS and mockery is frowned upon herein. Feel free to take special note of the "Courtesy Is Mandatory" part in the link below.

Understanding The Gray Area

----

Wishing you better days OP, I hope you can get to feeling better, and perhaps another opinion on your results would not hurt.

originally posted by: jackjoedoe
a reply to: lovebeck

the OP didn't tell the whole story. So I call bullshevic. There is no way any reputable doctor would have let the fact that the patient had an unknown mass in a CAT scan go undiagnosed, knowing that it existed.

The is something missing to this story.

Just because one section of the CT scan was brighter than the rest DOES NOT mean it is an "unknown mass." There's all kinds of reasons why that could happen. There's no conspiracy here, just the OP sharing their experience with ATS and seeking comfort from other members who might have had a similar experience or who want to offer support and/or advice.

You are clearly NOT a doctor, or a radiologist, so suggesting that the OP has an "undiagnosed, unknown mass" is not only irresponsible, it is probably terrifying the OP. I bet it violates all sorts of T&C's to boot...

If an actual neurologist, a BRAIN SPECIALIST, doesn't know what IT is, why do you assume you do? That is ridiculous. As is your assumption that there is "something missing" from the OP's story.

It's not your story to tell, so why bother with even posting a response to the OP if you feel there is "something missing?" Just go troll on another thread and leave the OP and the thread alone.

originally posted by: penroc3
a reply to: lovebeck


I started out at my PCP for the head ache and he sent me to see this eye / neurologist. got my scan, He told me he didn't know what it was but it was nothing to worry about and was very small.

I have another scan in 90 days to check up on it. but he assured me it was nothing to worry about but couldn't tell me exactly what it was.

i'v only had one seizure and haven't had one sense.

they gave me maxalt to take if I feel a headache coming on and it works very well at stopping them in there tracks.

as far as contrast I did not get any for the scan. I was under light sedation but im pretty sure I didn't get any.


jackjoedoe

why would I lie on the internet? I thought it was a interesting find and seeing as im/were into paranormal stuff here I thought it would be interesting to share. As soon as I get my CD I will post it here.

and as far as me not telling the whole story? what else is there to tell?

The fact that Maxalt is helping you tells me that you are having classic migraine type headaches. It is one of the triptan drugs (like Imitrex) that are used exclusively to stop migraine headaches before they become the full blown, send you to the emergency ward type of migraine headaches.

I myself take Imitrex for the one, maybe two migraines (if that) I get per year...The important thing is to take it right when you get that first twinge of one coming on and it does work like a charm. Imitrex knocks me out for several hours after taking it, it's like it completely shuts down my brain which I don't mind as long as it also stops the horrible visual changes I get and the projectile vomiting that go along with my MHA's!

I'll never forget the first one I had...I thought for sure I had an aneurysm and was going to die of a brain bleed before I even made it to the ER. I couldn't see, had projectile vomiting, and my entire head felt like it would explode...One of the scariest nights in my life, for sure. Luckily though, it was a migraine. After a while, you will learn what sets yours off. I still don't really know what set mine off but I have a feeling it has to do with the seasons changing based on the time of year that I do get them. I could be completely wrong about that though because I get them so infrequently, lol.

Go to the hospital's medical records department (where you had the scan) and request the radiologist's report...It will say a lot of mumbo-jumbo but at the end of the report it will say "Impression:" and that is the part where they basically put the findings of the CT scan and is usually the part the other doctors read when making their diagnosis.

If there is something causing the brainstem area to light up like a Christmas tree, surely it will be listed in the impression section of the radiologist's report.

The fact that he is repeating the scan in 90 days tells me he wants to see if it is still there and/or if it has changed at all. It probably is nothing...but seeking out this information may set your mind at ease or it may steer you in the direction you need to go.

By the way, you may have to pay a small fee to get the report, but it shouldn't cost very much, if anything. If the hospital uses EPIC software for charting/documentation, then you should be able to sign up for a free service called "My Chart" which would give you access to this information, as well as any other medical information you have on file, for free and from the comfort of your own home. You'd just need to contact the hospital/clinic where you had the CT scan done in order to find out.

Good luck. By the way, ignore all the trolls. It seems they just cannot help themselves here lately...