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We need to break down the isolation and in many cases the stigma that burden people living with autism spectrum disorders and often their families as well.” Francis said this during his speech to participants at a three-day conference sponsored by the Pontifical Council for Pastoral Health Care titled The Person with Autism Spectrum Disorders: Animating Hope. He also remembered Cardinal Fiorenzo Angelini, the first president of this dicastery, who passed away last night at the age of 98.
Autism spectrum disorders “constitute a fragility that affects numerous children and, consequently, their families,” the Pope said during his audience at the end of a busy morning schedule in the Paul VI Hall. “They represent an area that appeal to the direct responsibility of governments and institutions, without of course forgetting the responsibility of Christian communities. Everyone should be committed to promoting acceptance, encounter and solidarity through concrete support and by encouraging renewed hope. In this way we can contribute to breaking down the isolation and, in many cases, the stigma burdening people with autism spectrum disorders, and just as often their families. This must not be an anonymous or impersonal accompaniment, but one of listening to the profound needs that arise from the depths of a pathology which, all too often, struggles to be properly diagnosed and accepted without shame or withdrawing into solitude, especially for families. It is a Cross. Assistance to people affected by autism spectrum disorders would benefit greatly from the creation of a network of support and services on the ground that are comprehensive and accessible. These should involve, in addition to parents, grandparents, friends, therapists, educators and pastoral workers. These figures can help families overcome the feelings, that can sometimes arise, of inadequacy, uselessness and frustration.”
My very mild Asperger’s has helped me creatively. I sometimes hear a voice and think: “That could be a character I could do.” Of course there are many different grades, right up to the autism spectrum, and I am nowhere near that. But I sympathise with children who have it.
originally posted by: Yeahkeepwatchingme
I wish people would realize it's no laughing matter and when society focuses on people like Sheldon from The Big Bang Theory, they don't realize it truly affects people, and most don't have the opportunities and the means to be social.
Despite speculation that Sheldon's personality traits may be consistent with Asperger syndrome, obsessive–compulsive personality disorder and asexuality, co-creator Bill Prady has repeatedly stated that Sheldon's character was neither conceived nor developed with regard to any of these traits.
Some viewers have asserted that Sheldon's behavior is consistent with Asperger syndrome. The writers have stated that they did not use Asperger syndrome as a basis for the character, but instead thought of his actions as "Sheldony". Series co-creator Bill Prady stated: "We write the character as the character. A lot of people see various things in him and make the connections. Our feeling is that Sheldon's mother never got a diagnosis, so we don't have one". Prady also told Alan Sepinwell of the New Jersey Star-Ledger that while Sheldon shares traits with people with Asperger's, he was uncomfortable labeling Sheldon as having Asperger's.
In an interview, Jim Parsons noted the writers' response, but added that, in his opinion, Sheldon "couldn't display more traits" of Asperger's. Parsons, who plays Sheldon, has read John Elder Robison's memoir Look Me in the Eye about his life with Asperger syndrome, and said that: "A majority of what I read in that book touched on aspects of Sheldon". He also stated that "the way [Sheldon's] brain works, it's so focused on the intellectual topics at hand that thinking he's autistic is an easy leap for people watching the show to make".
He stated that the care for people suffering on the Autism spectrum is not only the responsibility of family and Christian communities, but also the direct responsibility of governments and institutions.
originally posted by: AboveBoard
I don't know how to respond except to say "yes." I am the primary caregiver for a child with severe autism. I'm told that the vast majority of families would have given up and utilized a group home or institutional environment for an equivalent child, and kept him there. It is extremely hard. I am struggling. (We had him in a two year program to help him, which was excruciating, and he is back now - we are grateful for all the help we have received, however!!)
I can say that unless you have borne this particular cross, there is no way to communicate its burden, but it is carried with love and lightened by the slimmest shards of hope.
I believe in him. I KNOW there is more locked inside him than he can let out, and that he deserves people that believe this about him. (See my signature.) He deserves the dignity of being seen as fully human, not simply as "disabled." He deserves people fighting for him and advocating for him, not to mention giving him a sense of belonging and family. There is no "winning" here and no "normal," just loving and surviving. I love my son.
It is extremely hard to be him! He suffers. Forget my struggles as his mom, he bears a cross himself that I can never understand, I just try to pick up a bit of its weight to help him along. As long as I am able, I will be his caregiver.
Any good thoughts anyone wants to send our way would be extremely welcome, and so the Pope's encouragement is important.
peace,
AB