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My New Battle

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posted on Sep, 28 2014 @ 12:36 PM
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So here it goes. Some months back I started having trouble swallowing foods. I was sent from my primary doctor to an ENT doctor. I had lost about 30 pounds in two months. The ENT sent me to a GI doctor which ran a scope and did some biopsies. No sign of stricture or cancer which was a relief because I use chewing tobacco. It was a wake up call as well.

From here I was sent to a Neurologist who did multiple labs which some came back abnormal. It shows I had inflammation in my body as well as my ANA was positive which he says can indiciate neuromuscular disease. I had an EMG done which looked great. I want to add I did swallow studies which showed abnormalities in swallowing, but could not pinpoint what the cause was.

At this point my joints, especially my hips and knees began to swell and ache. Fatigue and weakness is killing me, especially with 24 hour shifts at work. I have small rashes come and go. So he sends me to a rheumatologist... They talk with me more and do more labs and come to the conclusion I have Lupus. I am due to go back again for more consulting etc...

I was wondering if anyone has Lupus here, and if so, could give me some advice and help. They placed me on steroids as of now. I am open to anything! Blending food in my nutribullet has been helping alot, but scratches at my manhood...




posted on Sep, 28 2014 @ 12:43 PM
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a reply to: LoverBoy

Parkinson's runs in my family, and I've already begun developing difficulty swallowing. Chew thoroughly, eat with water taking small bites. Try to swallow naturally as much as possible to keep the system working well, but if you feel food building up, take small sips of water until it clears. The systems of the body can betray you, but just roll with the punches. If you find yourself choking, you do have the power to reverse the swallowing reflex. It is difficult to figure it out at first, but I've brought up everything that has attempted to end me.

What I do is I take a bite small enough that were I to swallow it without chewing, I'm confident it wouldn't kill me and then I mash it to bits. Never commit to swallowing anything you cannot manage.



posted on Sep, 28 2014 @ 12:47 PM
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a reply to: Nechash
Thanks buddy. I am sorry you are experiencing alot of the same. I have been drinking ensure drinks to help maintain weight. I have been on alot of mashed potatoes with blended pork and beef. Crockpot meats sometimes are tolerable to swallow.



posted on Sep, 28 2014 @ 12:50 PM
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a reply to: LoverBoy

The only two things I cannot eat at all are dry chicken breast and uncooked broccoli. Everything else I can manage through the methods I've mentioned. I was tempted to go to pureed food and soups as well at first, but I decided not to allow this condition to rule my life. Unfortunately, if you were in the military, you probably learned to eat very fast. This is the absolutely wrong thing to do with this condition. Slowing down is the real secret to managing this (at least from my experience). Just think of it as a form of meditation. Stay in the moment intentionally slowing down and savoring every bite. It is a good opportunity to remain in the moment, at least for a portion of your day.



posted on Sep, 28 2014 @ 12:51 PM
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Dysphagia. I have had my bouts with it. I had it so bad that I couldn't even take a drink of water.
In my case it seems to have been a side effect of alcohol withdrawal.
If you have been a heavy drinker for a long time and tried to quit cold-turkey, this could be the source of the problem.
I'm not a licensed physician, but you might try having a shot or two and see if it helps.
Good luck. It is a bitch of a condition.



posted on Sep, 28 2014 @ 12:57 PM
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a reply to: skunkape23

It is a kind of hell, but it can be endured.



posted on Sep, 28 2014 @ 12:59 PM
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a reply to: skunkape23
Thanks for the advice man. I am a recovering alcoholic but haven't had a drink in a very very long time. I wonder if it still could be part of the problem?

Necash that is a major problem. Even my job now we have to eat on the go because of such a high call volume. Im usually stuck with just drinking ensure and boost all day.



posted on Sep, 28 2014 @ 01:04 PM
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a reply to: LoverBoy

Go to a sauna. Does your sweat still reek of alcohol? I'm a "recovering" alcoholic as well. It runs in our family, and I rarely drink nowadays, but my sweat always smells of alcohol even though I don't drink anymore. I think after a certain point, the yeast that produce alcohol form a symbiotic relationship with the alcoholic. It is terrible and I've yet to find a solution to the problem. I'm assuming eventually this will stop, but I really don't know what to do about it and it doesn't seem as if modern science has an explanation for why I could still be metabolizing alcohol even though I no longer drink any of it. I had a doctor tell me he thought it was ketones and that I am prediabetic, but all of my bloodwork comes back normal and when I pee on a ketone strip, it isn't positive. How can medicine be so ignorant on a topic that should be so widespread in our populations?



posted on Sep, 28 2014 @ 01:08 PM
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a reply to: Nechash

You are so right man...

I never usually smell an odor, but they do say my breath smells of ketones sometime. The typical fruity smell. However like you said, all bloodwork comes back regular in aspect to diabetes.



posted on Sep, 28 2014 @ 01:12 PM
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a reply to: LoverBoy

Have you ever read the A.A. big book? Heavy stuff. I'd steer clear of that club if I were anyone. It seems it's just another way to undermine the individual authority and creativity of the practitioner. Another pyramid on this earth. And yet they are rocketed into a fourth dimension of existence? More there than meets the eye.



posted on Sep, 28 2014 @ 01:31 PM
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There could be numerous reasons for the swallowing reflex getting messed up. I will give you one possibility to consider, there are many more. Without knowing your eating habits this may or may not apply.

Processed cheese and pickles contain in above moderate amounts some times a chemical called Alum. This chemical adds excessive aluminum to the diet if you consume a lot of it. The symptoms of aluminum toxicity do match some of the symptoms you have given. Cooking with aluminum does add a little but not as much as pickles with alum listed. It is an antifungal that is added and it also supposedly makes pickles crisper, but I have not found that to be true. I think that was an excuse to get us to consume this chemistry that actually is a medicine. Too much and you need to slowly chelate this out of the body to reverse the symptoms. Too fast and you can get kidney pain.

Now, other conditions, including other metals, can cause this so I do not know if this applies. Aluminum buildup can cause parkinson type symptoms also, but that is not really true parkinson's disease unless it goes on for a long time.

Molybdenum supplements can help, so can foods that contain certain chemistry like cilantro. Funny how a natural organic fluoride compound can help with this. Cilantro is very strong though, it can take this and other metals out of the bones and tissues fast and cause some problems. Do not overdo a chelation therapy by taking too much at one time or you may have problems. Talk to your doctor before starting this, sometimes blood tests won't show this but once you consume a chelation food the aluminum if freed out of where it is stored and it shows up in the blood.

The doctors should try to understand this. What you consume before a test can help to identify possible problems better. It can also make it seem like you have problems even though you don't and lead them to the wrong treatment.

Now I am not saying this applies in your case but it is a possible explanation. One of many metals, but the ones with the best chances of being a problem are aluminum and mercury from your fillings. Sometimes lead can cause problems also.
edit on 28-9-2014 by rickymouse because: (no reason given)



posted on Sep, 28 2014 @ 01:42 PM
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Thank you so much for the insight. I had no clue about Alum. My eating habits well, before this all started were pretty bad. I was thinking maybe trying a gluten free type diet and see what happens. At this point I will do whatever.



posted on Sep, 28 2014 @ 01:51 PM
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a reply to: LoverBoy

Remember, there are metals in just about everything we consume. Our body can usually rid ourselves of these metals unless the organs get overloaded or they get shut off by certain foods or drugs. The reason I mentioned Molybdenum is because it is in an enzyme that helps to detox metals along with other undesireable chemicals, both naturally produced byproducts, or unnatural chemistry we are eating. There are many reasons these enzymes can get inappropriately created or being suppressed from being created when necessary. Medicine blocks some to lower inflamation and induces some to help us if we are sick. The big thing is being able to correctly diagnose the problem instead of guessing based on symptoms that are almost the same in many different diseases. Some doctors age good at this, others aren't. If you go to the wrong specialist, they can't help you.



posted on Sep, 28 2014 @ 02:22 PM
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a reply to: LoverBoy

Are You de-hydrated? The human body is 70% below the neck and 80% above it. If You're a 'sweater' this compounds Your dehydration. A liberal application of coconut oil where exposed to Sol, is better for Your largest organ than a sunscreen.

Look into Ayurveda. I do the oils, yoga and meditation and I'm off of 5 Rx meds.. Cholesterol went from 273 to 153. b/p went from 155/100 on 2 meds. to 101/67 on zero..

verialiving.com is a helpful site and 'Yogi Cameron' will answer Your question right on the site. They may have covered that ailment already and have a ton of shows listed.. It "may" help to ease Your fears when/if someBody throw out a diagnosis/dis-ease You might not like...

"Stress" is also a killer, literally. Each Self has the ability to heal itSelf..

I'm in the best shape now at 51 and I played 2 years of pro baseball and went through 2 police academies..

I hope You find the One for You.

namaste



posted on Oct, 2 2014 @ 11:05 PM
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24- HOUR WORK SHIFTS - I'm pretty sure I've identified a problem. May not be YOUR problem but as long as you are pushing your body to its upper limits, limits we've proven are dangerous and can lead to stroke, you will probably see a continued degradation in your health and possibly your overall mental well being.

Anyone else want to chime in? Working 24 hours straight doesn't seem like a healthy lifestyle choice, no wonder you can't eat food, you are taxing the ever living crap out of your body. Basically what I am saying which studies are proving, is that you can't make UP for LOST sleep. You CAN'T stay up for 2 weeks then sleep for 2 weeks, it doesn't work this way there is a balance to be kept. When you lose sleep continuously, some think you are shaving entire years off of your life, ultimately we don't really know...

Isn't there some kind of law about working 24 hour/shifts? Are you in the military? I would not want anyone to have to work a 24 hour shift - its inhuman on a very basic simple level. Maybe you are a fireman and take naps?



posted on Dec, 17 2014 @ 05:39 PM
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a reply to: LoverBoy

You would be wise to cut out meat especially if you are ill if you don't have the right balance of bacteria in you stomach you will not be able to digest the triglycerides in it also the protein is inferior to plant protein and when you cook your meat above 55 Celsius the protein in it denatures which becomes toxic to you once you hit say 30 years old.

to help your absorption try organic lemon and lime blended up skins and all this is the closest food you can get to your stomach acid it also cleans your liver and stimulates it to make different enzymes.
you would also benefit from having about 4 eggs a day but again don't cook them above 55 Celsius eggs have the 8 essential amino acids in them at the correct balance for your body also add in seaweed and brown rice.

if you have got parkinsons then this is a helpful website for you ceri.com this is some of the latest research on it all.

You want to concentrate on detoxing the aluminium out of you also fluoride has an affinity to aluminium so you want to take some Borax and to help the uptake of borax you need tyrosine. if you research this yourself you can beat it if you trust a doctor they will make you a customer for life for the pharma industry its your choice.

You want to get a slower food blender the nutribullet are to fast and warm up the food too much they are not very beneficial in comparison to a slower version.

One other thing have you lost your sense of smell?
edit on 17-12-2014 by jinni73 because: (no reason given)



posted on Dec, 17 2014 @ 05:49 PM
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a reply to: Nechash
You need to take Iodine to get the fungi out of you alcohol is sugar which ferments inside you and turns into fungus Iodine will neutralise this you want to get the old Lugols formula of 7% Iodine the 24.95 one is what you want this is perfect for the body you want to take about 10-20 mg a day the FDA recommendation of 150mcg Is criminal and nowhere near what the body requires Iodine is one of the best heavy metal chelators you can get
www.altcancer.com...



posted on Dec, 17 2014 @ 08:41 PM
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a reply to: LoverBoy

I'm so sorry to hear you are so unwell. I wish you the very best on your health journey, I do have a friend years ago who was diagnosed with it, and going super healthy seemed to hold it at bay for 20 years for him. He evens has the odd beer with us. I hope that gives you some direction and faith.



posted on Dec, 23 2014 @ 08:22 AM
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a reply to: zazzafrazz
Thank you very much! I have been to and continue to see multiple Neurologists and Rheumatologists. At this point its just one of those things I just have to suck up and keep truckin with.



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