posted on Aug, 25 2014 @ 10:21 AM
a reply to: FlySolo
I have a disease many people, if not most have ever heard of. It's not ALS or anything, what I have wont kill me, but it is as debilitating as it
gets... there is little to no research on it - and almost no awareness of it, and no cure.
The smallest little breakthrough's in treatments etc can mean the world to someone with a disease, any disease.
For the part of the patients with ALS, they are probably crying tears of joy that some money might go toward helping them, or someone like them, have
just a little bit more comfort in this life. For them, this ice bucket challenge is a miracle. For them, it matters not that some people just want to
be on Facebook. For them, it means a better quality of life someday - if not for them then for someone just like them.
It's so upsetting to see people angry because someone suffering terribly might get their voice heard, for a change, and some money raised to help