a reply to: knoledgeispower
An awful lot of people who know about the Ice Bucket Challenge, know that it is for this thing called ALS. But of those people who have heard of the
viral campaign, the percentage who actually bothered to look into the disease as a result will be fairly small, and smaller still is the number of
people who know what it is anyway, without having a familial link to it, or a friend who has it.
Diseases which have such horrific outcomes as ALS are a bane for all humans, not just those who are actually caught in the grip of such horrid
conditions. The reason I say that, is that people suffering from ALS are just like you, me, your neighbours and mine, in that we are all, as members
of a species, packed full of potential. Any one of the vast number of human beings born today, could turn out to be the next Nikola Tesla, or Albert
Einstein, or Da Vinci. Every time a human being has their potential robbed from them by a twist of genetic fate, no matter what the disease is, it
robs the rest of us of the potential benefits of having folks around.
Even if you have no heart, no concern for others, it is pretty simple logic that is required to understand that the more diseases like this, that
medicine can eradicate from the face of the planet, the more human lives which are lived to the fullest, untroubled by such appalling diseases, the
better for all mankind as a whole. I have no significant sum of money to donate, for I am a poor man. That will not stop me throwing a fist full of
change (it's just change, not spare change. There is no such thing as spare money), in every collection box, in every store I go into.
With specific regard to ALS, the fact that it is only effecting an estimated thirty thousand people in America, out of a total population numbered at
more than three hundred and seventeen million, does not mean that people in the medical and pharmaceutical industries should not be working like dogs,
day and night, year after year, to wipe it off the map. What it does mean though, is that for anything to happen, as many people as possible must do
all they can to illuminate the subject for those who have not yet heard of it. It also means that everyone must do all they can to force pharma
companies to start to view their profits as not a secondary consideration, or a tertiary consideration, but as the LAST consideration, the least
important consideration, when formulating their long term strategies.
If the future is to have any benefit over the times we live in today, then diseases like this have to be addressed, and addressed with all the vigour
available, without rest or relent.