Sara was like any other five year old girl: smart, beautiful, and loving. I couldn’t have asked for a better little sister. One day Sara was out
playing with her friends, like she usually did, but this particular day her friend threw sand in her eyes. Sara came home crying and we cleaned the
sand out of her eyes. Two days later Sara started to get what we thought was pink eye. After several doctor visits we discovered that she had Iritis.
Iritis is an autoimmune disease that causes the body to attack itself. Sara also started to have aches and pains in her joints, and we were getting
very worried. Little Sara was referred to an autoimmune specialist, Dr. Kuhls. He prescribed Motrin and sent Sara to two other specialists, a
Rheumatologist Dr. Brown, who did nothing, but golf, and Dr. Torrez, who was a gastro-enterologist. She was sent to Dr. Brown, because it was
suspected that she had rheumatoid juvenile arthitus, which turns out this is what she had the whole time, which again many, many people live with. Dr.
Brown never really told us anything except to give her Motrin as prescribed by Dr. Kuhls, I remember once when the Motrin wasn’t working and little
Sara had trouble sleeping we called Dr. Brown’s office that morning, she refused to talk to us or see us, because her, ‘golf tournament was more
important’, she literally told my mother that over the phone. She was sent to Dr. Torrez because they thought she might also have Lupus or Crohn’s
disease, two other types of autoimmune diseases. My mother was quite worried about Sara taking Motrin so often, so she questioned Dr. Kuhls about
Motrin every single visit. He always pointed out to her the back of the bottle, where it says it can be taken for more than two weeks ‘under a
doctor’s supervision.’ After four months passed, Sara got worse; She was looking very jaundice. That means the skin and eyes begin to turn
brownish-yellow in color, a sign that the liver is failing. Dr. Torrez admitted Sara into the pediatric intensive care unit (PICU) that day. Keep in
mind she was seeing all three of these doctors on a weekly basis, and she was seeing Dr. Kuhls twice a week. The day before Dr. Kuhls had seen Sara
and said she was fine. Several liver transplant doctors immediately approached us and started telling us that Sara would need a liver transplant if
she was to survive. As you can imagine we were in shock and had no idea what to do. Dr. Kuhls met us at the hospital and told us to ignore the
‘liver sharks’, which we didn’t really understand his terminology at the time. None the less the doctors began the preparatory work for a liver
transplant. The plan was to do a biopsy on Sara’s liver and see if my mother or father would be a match for taking a piece of their liver and
transferring it to Sara. At the time her platelet count was very low, because of her liver failure and the fact that they had taken five large vials
of blood for testing, so they were giving her platelets with plasma. When Dr. Torrez decided that her platelet count was high enough to do the biopsy
he preceded. Approximately 10 minutes after the biopsy Sara started to go into shock, and turn pale blueish. They rushed her up stairs and shot dye
into her stomach area to see if there was any internal bleeding on x-ray. They decided there was not and started to give her more blood even though
they claimed she didn’t have internal bleeding. Sara went into a coma and this was the last time she would ever talk to us. That night she had her
first seizer. Her brain was swelling from the toxicity in her blood, they drilled a whole in her head to relieve cranial pressure via a one way valve.
At this point # was getting way above serious. The next day they brought in a plasmapheresis machine. This machine cleans the blood and puts it back
into your body. They attached a very large, scary Y catheter in her carotid artery, which this machine connected to. She was having seizers two to
three times a day now. They discovered that our insurance only covered up to $100,000 dollars. We had good insurance, Blue Cross & Blue Shield. They
ushered us into a little conference room, and began drilling my dad about his finances. Some specific questions I remember included, “Do you have
any sports cars?”, “What kind of house do you have?”, “Can you take a loan out on the house, or sell the house?”, “Can you call the
president of the University you work for and ask for a loan?” They asked many more questions about my family’s finances, but those are the ones
that I can remember. Well the answer to all these questions was no. They told us that regardless of the cost, they would take care of it, even if they
had to forgive our debts. The doctors started to tell us that unless she awakes from her coma there will be no hope for a liver transplant. By Tuesday
they started talking to us about disconnecting her from life support. I can still remember, it was Wednesday nine AM, my mom, dad, sister, and me each
gave her one last hug and kiss, and then Dr. Griggs disconnected her from life support. I can remember it just like the movies, he looked up at the
clock and said, “time of death 0902”. I watched her lips turn purple. I felt her body turn cold. I watched her die. My father demanded an autopsy,
so that gladly had him fill out the paper work, he specifically told them that the autopsy must be done at another hospital, and by different doctors.
They did an autopsy alright, Dr. Griggs completed it. Which by the way it is rare for the attending pediatric intensive care physician to do an
autopsy; usually they allow the mortuary doctor to do it. The cause of death was due to autoimmune attack on the liver, according to the autopsy.
After this we were in complete shock, exhausted and traumatized by the whole episode, my family slept for days. After a few months passed we set out
to discover what happened.
A long story short we went through several doctors and lawyer, but none would touch it. Every doctor and lawyer that was within a 500 mile radius
refused to even look at her medical records. We later found out this is because their malpractice insurance will drop them if they testify against
another doctor. Long story short after 1 year and a half of searching and being denied we found a laywer from another state that was willing to take a
look, he sent her records off to a doctor at the Mayo Clinic. We found out that Dr. Kuhls had purposely prescribed Motrin to Sara in order to cause
liver failure, so that the hospital could do a liver transplant. Her cause of death would have been ‘drug induced liver failure’, without a liver
transplant, but it gets worse. They were attempting to become the best pediatric liver transplant institute in the world, and the only way to do that
is to do more pediatric liver transplants. When they discovered that our insurance had run out, they allowed her to bleed to death after the biopsy,
rather than do emergency surgery. Insanely they had even given her the wrong blood type, and they heated the frozen blood up in microwaves! They also
gave my sister an extremely high dose of Demerol that would kill a full grown man. At least they had heart enough to kill without pain right? This is
why she appeared to go into a coma, on that Friday. They had actually killed her four days before they disconnected her from life support, but
pretended she was still alive the whole time.
edit on 6-7-2014 by lobograndemalo because: (no reason given)
edit on 6-7-2014 by
lobograndemalo because: Removing hospital name