This is a fascinating account of your direct experience with this profession. I enjoyed the read, but felt your frustration as well. I can understand
how you feel like your hands are tired, both as a patient, and as a therapist. Thanks for sharing this with us.
Although not particularly on-topic, I'd like to share my frustration with the 'health-care system' if you'll permit. As my name implies, I was
diagnosed with narcolepsy. It was diagnosed and treated (if you can call it that) by the supposed leading neurologist in my area.
So we experimented with meds for about 2 years. He threw the entire catalog at me in various doses and I felt negligible relief. In fact, many of the
meds gave me intolerable side-effects. I consistently expressed my dissatisfaction with the medications; these were not a solution. Finally we reached
a point where I had tried everything to no avail.
I felt the neurologist wasn't very understanding of my concerns and complaints. He never seemed to truly understand the symptoms I complained of
(whether due to the narcolepsy or the side-effects of meds.) When I'd complain about how awful the side-effects were making me feel (coupled with the
fact they weren't helping me,) he'd pretty much just say deal with it
. He seemed totally clueless and unsympathetic. Even worse, he seemed very
overbearing--he often 'guilted' me into taking higher doses of a med that I complained to be having side-effects from. He'd guilt me into it by saying
things like I'd cause a car wreck while driving etc. etc. "You have to try this or you'll never be able to function." This was his attitude. No, I'm
I discontinued treatment at his office. I got a second opinion on my diagnosis from another clinic and they offered to try some medications that I
have already tried. I felt helpless so I just gave up on treatment altogether.
A few years later I returned to the office of my original neurologist to see if any new treatments were available. Nope, just the same old roads I've
been down before. Oh well, I tried faithfully. Then I mentioned, "Oh by the way, there's this one med I heard of recently called _____. Would I
benefit from that?"
"No," he said, "I wouldn't prescribe that to someone with your symptoms. It's used to treat a symptom you don't exhibit."
I said, "Thanks for your time, but I'm not going to seek treatment with you at the moment."
He wasn't having it! He wanted to schedule me for another sleep study, another multiple sleep-latency test, as well as another test he designed
himself. "No thanks," I said.
He told his receptionist to check with my insurance, to schedule all the tests for me. "No," I insisted.
He then turned on his guilt tactics. "NB here will be a danger on the road for everyone. Would you want to drive knowing he's out there?" he
disingenuously asked the receptionist. He told her again to make the appointments. (By the way, I've never been in an accident, never fallen asleep at
the wheel. Totally spotless record aside from a single traffic ticket when I was 16.)
I say, "Here's my co-pay. Don't schedule the tests. You won't be seeing me again. Bye!" And I start walking out of the office with the doctor saying,
"At least take some free samples of _____, then we'll talk again."
The free samples he wanted to give me were of the medication he just said he would never prescribe to me! Sheesh, just how many kickbacks does this
guy get from pharmaceuticals?
I felt like I was dealing with a used car salesman, not a respected neurologist. I had to deal with this for about 2 years while being treated in his
edit on 26-6-2014 by NarcolepticBuddha because: (no reason given)