I was wondering, does anyone here have experience with hyperbaric oxygen therapy?
I'm trying to get my son into one of the experimental studies using HBOT due to a severe brain injury. I know of at least one other member who has
tried it for an autistic child. But I'm looking for more information so that we can afford this treatment for my child.
The closest study I can find in Oklahoma is in Oklahoma City (an hour and a half drive from home), but the physician who is working in conjunction
with the study is located in Tulsa, which is a 3 - 4 hour drive for us (And I can't get them to call me back to set up the initial exam!). I could
make those drives a couple of times with no issue, but they want him to spend an hour a day in the chamber, six days per week for a total of 80
treatments - so around three months total. Then, we will have to buy a portable chamber to have at home for maintenance treatments every so often.
If we could find a doctor who would prescribe the chamber and then show me how to use it a few times in an office setting, I think we could do the
vast majority of the treatments at home. I'm very excited about this treatment because I think it really could help my son with a minimum amount of
So is there anyone else here who has children who have undergone HBOT? Did it help your child and in what ways? Did you participate in a study or
did you pay for the treatments? Did you see any adverse side effects? Do you know of any studies for children that you would recommend?
The only downsides to this treatment that I can find are the travelling distances while I try to work 40 hours a week, our insurance won't pay for
any of it, because it hasn't been proven (probably because it doesn't involve a ton of pills and drugs for the pharmaceutical companies to make
money!) and is still experimental. I have also found a few studies that would involve less driving, but they will only consider candidates who are
adults and have seen active combat. My son is only 9 and has no combat experience except with Nerf guns - lol.
Our pediatrician has indicated that she thinks this could really turn things around for my son, as she has read up on it quite a lot since she took
over his treatment. Unfortunately, she says she isn't trained well enough on the subject to write us the prescription for the portable chamber or to
show us how to use it properly.
It baffles me that apparently the military has some faith in this therapy, as there are trials going on everywhere for returning combat veterans, but
the insurance industry thinks it's hokum and it would be better to just prescribe some more pills - they WILL pay for chemicals, but not pressurized
Any suggestions or information about your experiences would be greatly appreciated. And please tell me what the person was being treated for, as I
know they are using this for autism, chronic concussive syndrome, brain injuries and all sorts of brain related conditions.